Hi everyone! I just wanted to post an update that I have my consult with Dr. James K. Liu in New Jersey! I am being seen 4/28 @ 2:30! I’m very excited to officially have my next step in place. Now I pray he agrees to do the sugery 
I don’t know why he wouldn’t, but I have (just like I’m sure so many of you as well) been dismissed by so may doctors I don’t think I’ll beleive it until I hear him say he’s doing the surgery. I have such anxiety around doctors appointment now. I will update after the appointment and let everyone know how it goes! I also want to thank everyone because without this site I would have never found Dr. Liu!!
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Great that you have an appointment next week! I hope that it goes well and that he’ll help you- do you have someone who can go with you? Let us know how you get on 
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What is he doing for you? I’m scheduled to get c1 shaving on both sides and both styloidectomy’s from him in May.
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@Jules thank you!! Yes, both of my parents are coming with me. I will definitely update as soon as I get home Tuesday! 
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@Burton35o so glad you got your sugery scheduled! I am going to my consult for a styloidectomy. I have very long styloids and a lot of symptoms. How was your experience with Dr. Liu so far? I’ve heard such good things.
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Medical anxiety after years of dismissal is very real. Medical PTSD. I hope you hear the words that you’re able to get surgery. Fingers crossed for you. Hoping the very best for your appointment.
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@VisibleEvidence aw thank you so much, that’s so sweet! And yes, it definitely is!!
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I’m excited for you, @Emmaann! Can’t wait to hear how your appt with Dr. Liu goes!
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Thank you so much @Isaiah_40_31 !!
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@Burton35o & @Emmaann - In addition to the few stories about Dr. Liu on this forum, here’s one I just received in my email - EagleSyndrome.Net - Eagle Syndrome Awareness & Support.
eaglesyndrome.net is a newer ES forum started by Malvin Young, a Canadian, who had to travel to the US for his ES surgeries due to lack of available medical care in his own country.
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Isaiah, you are so amazing and helpful. That articles helps ease my mind. Thank you so much for everything you do for this group. You help a lot of people
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I’m very happy to be here for you, @Burton35o & am glad the article helped you feel more at peace. 
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@Isaiah_40_31 i love, love, love this! Thank you so much for this article! I have my appointment tomorrow so I’ve been nervous (but excited!) all day. This put me more at ease!! 
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I’m glad it was helpful, @Emmaann! I aim to please. 
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You’re in good hands update us how it goes 
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@Gaby - How are you doing now?
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Hi everyone I’m sorry it’s been so long since I posted but honestly, since my appointment I have just been so depressed and feeling so sick. I thought this would be IT and he would understand everything I was saying. It’s probably just me because I always expect to be dismissed by doctors but because my styloids weren’t crazy long and I had no immeadiately seen compression I just felt defeated again. I guess I just wanted to hear: “these are coming out and you are finally going to get relief after 20 years.” However, Dr. Liu did order a cerebral angiogram with manometry that I had on 6/2.
These are those findings:
Of course I looked these results up in a million different ways and read everything possible and it looks like my symptoms are positional and that surgery will help. Now I am waiting on Dr Liu’s office to call to schedule my follow up to go over this. I’m so nervous. All I want is these bones out of me 
Thank you everyone for keeping with with my story and I will post once I have my post procedure follow up. 
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I’m sorry that you’ve been down recently, it’s so hard battling the system when you’re feeling rough, & I remember well the anxiety about appointments when you’re desperate for someone to help you
I hope that Dr Lui agrees the surgery will help!
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Thank you @Jules!!