Hello All,
I hope you all enjoy summer 
I have virtually met with an IIH specialist in London, UK. He ordered I have an MRI of the brain to start with. I will fly to London to have this done with an upright MRI machine as I am too claustrophobic for the regular tube MRI machine.
Take care!
Audrey
I hope that this goes well, a long way to have to travel! How do you find the flying with your head pressure, does it worsen it? Thinking of you 
Hi @Jules,
It’s a long way indeed. Montreal-London takes around 7 hours.
I feel the pressure a bit during landing.
On another note, I find the UK absolutely gorgeous 
.
Audrey
That’s good! We’re pretty hot here at the moment though!
I’m so glad you’ve been scheduled for the MRI, Audrey. I hope it provides the necessary information to keep your treatment moving forward. 
BTW - I LOVE London, & the UK in general, too!!
Thanks you so much 
Audrey
Hello Hamela
could you share the name of this specialist? Thanks so much
Hi @Veroguilnec,
I see you are from France, I do speak French as well
The name of the IIH specialist in London is Dr. Ahmed Toma.
Take care 
Audrey
merci infiniment Hamela!
Oui je suis française ,un pays très peu aidant dans les pathologies Eagle …
Translation:
Yes, I am French—a country that is not very helpful when it comes to Eagle syndrome…
Dr. Ahmed Toma n’est pas spécialiste du syndrome de l’ aigle, il est spécialiste de pression intracranienne entre autres. Dr. Shakeel Saeed est un spécialiste du syndrome de l’aigle où il pourrait vous guider.
Audrey
Translation:
Dr. Ahmed Toma is not a specialist in Eagle syndrome; he specializes in intracranial pressure, among other things. Dr. Shakeel Saeed is an Eagle syndrome specialist who could guide you.
Hamela
je prends références.J’ai des troubles visions de plus en plus importants avec sténose des veines jugulaires internes( à gauche grosse sténose entre styloide et apophyse transverse de C1, à droite jugulaire interne très plate mais à priori C 1 non concerné )Mon ophtalmologiste réfute une potentielle HIC expliquant mes troubles visuels (vision de plus en plus floue)..donc peut-être devrai-je consulter un vrai spécialiste de HIC?
Translation:
Dr. Ahmed Toma is not a specialist in Eagle syndrome; he specializes in intracranial pressure, among other things. Dr. Shakeel Saeed is an Eagle syndrome specialist who could guide you.
I’m taking note of this. I am experiencing increasingly severe vision problems associated with stenosis of the internal jugular veins (on the left, there is significant stenosis between the styloid process and the transverse process of C1; on the right, the internal jugular is very flattened, though C1 does not appear to be involved). My ophthalmologist rules out potential intracranial hypertension (ICH) as the cause of my visual disturbances (increasingly blurred vision)… so perhaps I should consult a true specialist in ICH?
Oui certainement, je vous comprends.
C’est Dr. Shakeel Saeed qui m’a référée à Dr. Ahmed Toma.
Veuillez, svp, me donner de vos nouvelles.
Audrey
Translation:
Yes, certainly; I understand.
It was Dr. Shakeel Saeed who referred me to Dr. Ahmed Toma.
Please let me know how things go.
I disagree w/ your ophthalmologist, @Veroguilnec. With severe IJV compression, unless your collateral veins are doing a remarkable job of helping your IJVs drain blood from your brain, severe ICH results. ICH is medically documented to cause swelling/irritation of the optic nerve & vision problems. It seems odd to me that an ophthalmologist wouldn’t understand the connection between your IJV compression, ICH & your negative vision changes. Perhaps ophthalmologists aren’t well educated in the realm of vascular compression syndromes & the symptoms & affects they can have on the eyes?