Just read in a couple of medical journals that people with Calc. Sty. present problems during intubation. I have always had difficulty; in fact, during one surgery, they had to force an intubation, I fought them. They said I kept trying to remove it. Now I know why.
These studies were from 1970 and 1990...
When i had the second styloid process removed (left side) the dr said they had to intubate me twice because they couldnāt get down my throat. That side had grown sideways into my throat. i think my vagus nerve was damaged because i am getting all sorts of symptoms indicative of vagal nerve damage. NOW, i have to find a neurologist who wonāt blame it on imagination or hypochondria. The last neurologist i went to said āI donā even think you had Eagle Syndrome!!! Even though he had seen the x-rays, ct scans and reports by all my other drs. Needless to say, i am not going back to that idiot!!!
Oh, I still have records of various fools who have taken me down that lane. I am going to be sure to discuss my concern with the Anest. when I have my pre-op. I think the procedure I had done in 2008 to correct an error by a dr. caused my ES to worsen. I feel as if my throat has thickened. I am also going to contact a heart specialist who felt I had heart problems during my SCDS surgeries, with nothing showing on the follow up EKGs; I believe it was the pressure on my vagus nerve which triggered the palpitations.
After that procedure, I could not talk for a couple of days, one of the support staff told me about the forced entubation, but it was not in the official medical record.
tiger said:
When i had the second styloid process removed (left side) the dr said they had to intubate me twice because they couldn't get down my throat. That side had grown sideways into my throat. i think my vagus nerve was damaged because i am getting all sorts of symptoms indicative of vagal nerve damage. NOW, i have to find a neurologist who won't blame it on imagination or hypochondria. The last neurologist i went to said 'I don' even think you had Eagle Syndrome!!!! Even though he had seen the x-rays, ct scans and reports by all my other drs. Needless to say, i am not going back to that idiot!!!!
I also have heart palpitations, trouble swallowing, slow digestion, diarrhea sometimes, constipation other times etc etc etc! I am not trying to point the finger of blame on anyone I just want a diagnosis. I want to know if there is anything I can do to alleviate the symptoms or do I have to live the rest of my life with them. I am 62 years old. I have been diagnosed with fibromyalgia but all the symptoms of that are also symptoms of vagal nerve damage. I am tired of diagnosing myself. I had a dr who was GREAT. He was the one who got me on the right track. He said "THERE IS SOMETHING WRONG WITH YOU!" LOL.. NO KIDDING!!!!! Unfortunately, he has moved his practice about 50 miles away from where I live. I think I will make an appointment anyway. It will be worth the trip.
Tiger.
Yes, your list is also mine. I just feel like I am giving a litany everytime I fill out medical forms. I believe my fibromyalgia is a result of my body fighting ES and SCDS.
But because so many of us are women, well, there it is. Plus, if you are over 40, well add another bonus point. However, if you are young, well, that is a different kind of negative response from some drs. Add kids, a job, etc., well, even when it shows up on an xray, they try to explain it away...
Guess I have been around the block too many times.
Ladygw: One doctor blamed everything on menopause. LOL. I stopped going to him really quick!
You should DEFINITELY tell the anesthesiologist your situation with the styloid. They might be
a little gentler! I worried that they would break off part of it before the surgeon could cut it off. There are
a lot of BAD anesthesiologists out there. If the tube won't go they force it. :-(
I am hoping once my life calms down my fibromyalgia will also calm down. I am sure there are a lot of
doctors out there who also think there is no such thing mainly because it is a "woman's" disease! lol.
Hard to believe there is so much ignorance out there.
Ladygw said:
Tiger.
Yes, your list is also mine. I just feel like I am giving a litany everytime I fill out medical forms. I believe my fibromyalgia is a result of my body fighting ES and SCDS.
But because so many of us are women, well, there it is. Plus, if you are over 40, well add another bonus point. However, if you are young, well, that is a different kind of negative response from some drs. Add kids, a job, etc., well, even when it shows up on an xray, they try to explain it away...
Guess I have been around the block too many times.
Hi all of us Women & Guys,
We are not going crazy if all of us are having the same symptoms! Iāve been sick for over 21 years! I think my whole problems started when I got bit by a tick and got Lyme Disease. It took almost a year for that to be diagnosed. So my whole immune system got all messed up and shortly thereafter I started getting these wicked headaches that became an everyday occurrence! Then the earaches started! This was back in 1998! Still I didnāt make anything of it. I also had Fibromyalgia and Irritable Bowel Syndrome. Thatās when your intestines canāt make up their mind if they want to work overtime (Diarrhea) or hardly at all (Constipation).i also got psoriasis just on the Palms of my hands and the arches of my feet. That is currently under control. Iāve been seeing a Craniosacral Therapist & Acupuncture Physicians for pain control. Had to have surgery on my Neck vertebra from OsteoArthritis of the Spine. Had an Anterior Cervical Spine Fusion (C-3 through C-7). I swear that has made the symptoms worse! Tinitis is driving me nuts! Trouble chewing & swallowing! Hurts to turn my neck. My sinuses are always plugged & full? Itās not a cold. My CT scan shows Bilateral Styloid Processes that both come around & Meet at the Hyoid Bone. This was only āHighly Suggestive of ESā. I get terrible knots in my muscles on my shoulders! Basically what I have been having is Severe Tension Migraines. The tension never stops. Everything you all said I have experienced! We are very Sane & Courageous! Sorry for making this so long! Iāve just been so miserable. Finally going to go see Dr. Forrest at Ohio State University Medical Center. Iāll keep you posted on my progress!
Crysal,
wow. You have gone through so much. Hope you get the help you desperately NEED. You are an amazingly strong person. Please let us know if this dr will finally help you. I hope so.
~ tiger
Crystal said:
Hi all of us Women & Guys,
We are not going crazy if all of us are having the same symptoms! I've been sick for over 21 years! I think my whole problems started when I got bit by a tick and got Lyme Disease. It took almost a year for that to be diagnosed. So my whole immune system got all messed up and shortly thereafter I started getting these wicked headaches that became an everyday occurrence! Then the earaches started! This was back in 1998! Still I didn't make anything of it. I also had Fibromyalgia and Irritable Bowel Syndrome. That's when your intestines can't make up their mind if they want to work overtime (Diarrhea) or hardly at all (Constipation).i also got psoriasis just on the Palms of my hands and the arches of my feet. That is currently under control. I've been seeing a Craniosacral Therapist & Acupuncture Physicians for pain control. Had to have surgery on my Neck vertebra from OsteoArthritis of the Spine. Had an Anterior Cervical Spine Fusion (C-3 through C-7). I swear that has made the symptoms worse! Tinitis is driving me nuts! Trouble chewing & swallowing! Hurts to turn my neck. My sinuses are always plugged & full? It's not a cold. My CT scan shows Bilateral Styloid Processes that both come around & Meet at the Hyoid Bone. This was only "Highly Suggestive of ES". I get terrible knots in my muscles on my shoulders! Basically what I have been having is Severe Tension Migraines. The tension never stops. Everything you all said I have experienced! We are very Sane & Courageous! Sorry for making this so long! I've just been so miserable. Finally going to go see Dr. Forrest at Ohio State University Medical Center. I'll keep you posted on my progress!
Crystal. I believe that we could overlay our symptoms, we could develop patterns. But someone has to care enough to do it. Someone in the medical field. It is the same with my SCDS, etc. I just want to burn all of my medical history and live in a house with 360 degree windows, except that being out in the midday sun makes me sick and I get rashes....... I thrive at night... but need the warmth. I just saw in one of my old medical records that the dr. wanted me tested for Lupus. I didn't even know that, nobody said a thing. I think I will check it out after my surgery. Geez lueez.
Interesting you bring this up! I've had over 10 surgeries in my 43 years of life and almost every one of them they have stated that I was difficult to intubate.
Since my Eagles diagnosis in June of '13 my psyche has been working overtime, wrestling, working on an explanation, putting together the medical pieces, filling in the gaps and putting together the story, timeline, the how's and why's since my pain began in '93. The only plausible theory I can come up with for this Eagles phenomena is this: When I was 4 1/2 I had my tonsils out, this agitated my styloids and this is when they began to elongate and calcify. In '93 when I was 23 this is when the pain and all my symptoms began and this is when I believe they were completely calcified and my stylohyoid ligament and surrounding structures were also totally calcified.
In 1995 I had a baby girl named Faith :) <3 The whole pregnancy was rough and so was the delivery. 36 hour labor and I ended up having an emergency C-section. They quickly had to forcefully intubate me, they thought I was out and under but I guess on a subconscious level I was still "there or present" because I faintly remember the tiny tube trying to be guided down. They were trying to force air down my nose and I remember someone saying, "Not breathing. Not breathing." I heard a baby crying then I realized they were referring to me as I felt the jolt because they were shocking me. They never got the tube down! I think it's mainly due in part to the way the head has to be tilted in order for the apparatus to be inserted? I don't know, just a guess. Plus in most Eagles patients they stylohyoid ligaments are larger than normal and there are calcified growths around the trachea, esophagus and clavicle. (There were in me. Dr. Forrest scraped growths from me around those areas while he was in there!)
Wow.
I have compiled my history, too, have been doing this for years. I know I had problems as a child; these were aggravated when I was assaulted as a teen. I wonder if we were prone to problems because of fetus and early childhood development. So many things.
Hi can someone explain to me about intubation? Do i have to get that when i have my surgery?
Intubation is when anaesthetists put a tube down the windpipe once youāre unconscious. Itās used in operations to protect the airway from you vomiting and inhaling that, and to administer the anaesthetic drugs.
Obviously from the above discussions, you can see that occasionally people with ES have had problems with this, but it is rareā¦ if youāre concerned the best thing would be to discuss it with your doctor before surgery.