I suspect I may have Eagles. I’m don’t want to type a novel here but I’ve been dealing with chronic symptoms for over 10 years now that upon discovering Eagles seem pretty similar. In the past couple of years things have worsened and my quality of life is greatly affected. I’ve only ever had X-ray, MRI, and CTA (which were both “clear”). I’m wondering if anyone can view my styloid in these images? I’m not looking for any medical opinion of course but just general opinions. Im in Canada and don’t even have a family doctor in my province so Im not even sure where to go from here. Ty!
Welcome to our forum @Phoevj! I’m so sorry you’ve been suffering for that many years. I just checked your account & for some reason it didn’t update after you posted so I just manually upped your “trust level”. You should be able to upload or drag & drop your scan image(s) into your next post here.
Thank you for the response. I have to first get a doctor and request the imaging but it’s like pulling teeth here. It’s very defeating and because I’m young (25) I’m constantly told it’s anxiety when I know it’s not as I’ve had these symptoms since childhood. Things like constant brain fog, DPDR, dizzy/ drunk feeling, head pressure. Everything else is on the right side for me like throat pain/ ache, pressure, blurry vision at times (and I’ve had perfect eye exams), fluttering in my right ear when touching right side of my face, pulsatile tinnitus when turning head to left, I can’t lay or put pressure on right side or I get intense head pressure and throbbing headaches (have only slept on left side for the last 10 years), neck pain, ear fullness and pressure on right side, etc etc etc. I’m so tired of living this way.
Thanks very much. I’ve shared the photos. I don’t know if anything is visible but thought I’d share as it’s all I have right now. also shared symptoms replying to another comment.
We have VERY similar symptoms @Phoevj . I’ve been bedridden on and off since October due to the chronic drunk dizzy feeling. All my symptoms are on my left though. I’m from NS, so I know the struggles having to deal with Canada’s health system. It’s infuriating to say the least.
Either you have really tiny styloids, or they are being hidden by your veins and/or jaw. Hard to say. I need your full imaging to see what’s going on. I’m curious to see if your hyoid bone is causing any of your problems too.
Based on your symptoms I suspect you have some compression going on, due to the fact you can’t lie on one side and symptoms get worse with head movements. I suspect an IJV is compressed causing the pressure headaches, and maybe a carotid artery causing the dizziness stuff. IJV can cause dizziness too though. Really can’t know until you get your full imaging.
Just for reference, here are my styloids for you to compare. I can’t see yours even though I’m looking in the same spot (directly under ear canal).
Like so many others on our forum, @Phoevj, it appears you’ve mostly lost the lordotic curve in your neck. That brings the styloids & even the hyoid into closer proximity to local nerves & blood vessels which increases the risk of those being irritated. The curve can be restored by gentle PT exercises which have been discussed on our forum.
Since I can’t see your styloids either, it’s hard to know their contribution to your bilateral IJV compression. It looks like your left IJV is compressed by C1.
Thank you so much for taking the time to share this. I appreciate it so much. I do agree with what you said. I’m not sure where to go from here. I guess the first step is getting a doctor who will listen (which has proven to be incredibly hard). This feels so defeating! I’m returning to school this fall for social work and just want nothing more than to be able to complete this program + help people in the future, but it’s so tough with these symptoms. I will check out the resources you’ve shared. Thank you so much!
Thank you so much for sharing this. I’m so sorry to hear you’ve been bedridden and are experiencing similar symptoms. I work P/T right now but am returning to school in the fall for social work and am really hoping I can get through it. I want to work in health care and hopefully be a voice and advocate because, you’re right, dealing with Canada’s health system is infuriating. I’m just feeling so much frustration at having to “prove” my symptoms because I’m young yet I have a significantly reduced quality of life and that’s just disregarded. Not sure where to go from here. It’s so hard. Again, thank you for your time. I’m wishing you the very best on your healing journey!!!
Thanks!! I’m a phd clinical psychology student and it’s so frustrating being told by doctors that I have anxiety. I’m like nope, I do not have cognitive driven anxiety. They can’t grasp the fact that the vagus nerve can cause the anxiety sensations. Super frustrating. Fortunately I’ve been able to complete a couple courses and work on my dissertation remotely. Good luck with school!!
I’m sorry, not an expert but it looks like you have teeny styloids? There certainly is something causing IJV compression though… @TML knows more about the hyoid, it looks to me as if the hyoid processes look at bit long? So frustrating that it’s going to be hard going for you getting answers in Canada, & so hard when you want to get on with your life …
