Thanks again for all the details. Did you, or do you see many other people on here that have primary symptoms such as tight throat and ear fullness? Those are my main symptoms rather than pain. I feel like at least if it was pain I could take something to try and help with it while I try to figure it out, but the throat tightness and feeling like I can't breathe has basically got to the point over the last month or so where I am barely functional and probably suffering from malnutrition since I am not eating much. Lately it seems like the throat tightness and ear fullness are there more even when I'm not eating. Previously I would actually feel somewhat normal if I didn't eat anything but now it is constant. I always wonder if this is from the tonsil or styloid slowly getting larger or something.
Tests I've had in the last 2 years:
Multiple CT scans with and without contrast: Sinuses, Brain, Neck (only thing ever found is deviated septum and mucosal thickening in sinuses)
Multiple MRI scans: Brain, Neck, Upper Spine
Allergy skin testing, 5 times - Never shows any food allergies. Lots of moderate environmental allergies like weeds, trees, grasses.
Allergy food patch testing: No reactions
Allergy blood testing (IgE Immunocap) for foods, 2 times - slightly above threshold for wheat, barley, rye, and oats. Mayo Clinic allergist and one local allergist said it was insignificant. One local ENT continues to tell me I have food allergies and should avoid wheat.
Stress Echo Test, 2 times: Normal both times
EKG, multiple times: Always normal
Metabolic/Pulmonary Stress Test: Normal
Chest x-rays, multiple: Always normal
30 day heart monitor: Normal
Upper GI barium swallow: Normal
Swallow study with speech pathologist: Normal
Gastric emptying study: Normal
Hearing test/ear pressure test, 3 times: Always normal
EGD scope, 2 times: High eosinophils from biopsy both times led to diagnosis of Eosinophilic Esophagitis. I feel like this may be an incidental finding though since the classic symptom of this is food getting stuck and having to cough it back up, which I don't have.
Standard blood work (CBC, metabolic panel, lipid panel, etc.), multiple times: Always normal
re-reading your posts--
Keep your tonsil and rule out ES. Removing the tonsil will be unnecessary risk and won't solve the elongated styloid symptoms. It's a separate issue if the tonsil has been identified as being infected and needs to be removed regardless of the ES symptoms you seem to have.
Your oral surgeon should use a panoramic x-ray and capture the area where the styloids start on both sides at the skull base and see what they look like.
My background on this,,,,,,,in 1989 I started having ear pain and throat pain raw and hot constantly. Could feel a hard structure in the back of my throat up towards the tonsil. I went to dr. and said I had an ear infection but my eardrum was fine. I had ct's, mri's, which showed nothing there, was sent to an allergist, 5 ENT's, a plastic surgeon who said it was a deviated septum and that I could get my insurance to fix that and have a nose job--that is a plastic surgery scam-I really like my nose and if it was a deviated septum casing my pain wouldn't I have had it sooner than at 30 years old?
I was given 3 courses of steroids-the 7, 6, 5, 4, 3, 2, 1; 7 day pack that did nothing but make me feel all fuzzy headed.
In August of 1990 I described-just described, my symptoms to my old orthodontist and he said "you have eagle's syndrome and need a panoramic x-ray from an oral surgeon" he called a friend in LA and I got it done. It showed the right styloid was 3-4 cm long and was removed in November. Only 18 months. I had 6 years of no pain and then I got it on the left in 1996-I knew what it was but this one a lot longer but the symptoms were the same. It took 6 years to have the first surgery but the doctor removed my hyoid bone by mistake, one more year to have 3cm removed which did nothing for my symptoms. and then 11 years to do it again. 18 years total. I did give up after the 2 failed ones but moved ahead 3 years ago because I didn't want the pain anymore and surgery and healing is better when you are younger. I didn't want to put up with it for 20 more years and do it when I was 70. If a doctor would even do it--see all members posting for that frustrating symptom-reticent doctors.
As you can see here, most doctors tell us that our pain is caused by everything else but an elongated styloid--look at all the money wasted for all the tests that showed we were all fine and only in need of psychotherapy instead or "a good stiff drink". But when the styloid was removed many here had all their symptoms disappear. ugh!
Good luck in your search for the reason for your symptoms but as a layperson I doubt it is your tonsil.