I had an appointment with Dr Alessi who works in Beverly Hills, CA. He is very nice but I'm feeling like he won't help me with the pain I am experiencing. To recap for those that don't know my story, I had styloids shortened a few years ago with not much improvement in symptoms. I didn't know much about Eagles syndrome at the time and I don't feel like that doctor removed nearly enough of the bone. I still have styloids that are around 2.5 to 3 cm in length and calcified ligaments where they attach to the hyoid.
I feel a bone sticking in my throat, I can put my tongue on it. I feel like it is causing compression to either the artery or jugular vein when I turn my neck, possibly compressing the glossopharyngeal nerve as well.
My situation is complicated by the fact that I have also been diagnosed with Thoracic Outlet Syndrome. I am treating that condition, but I nonetheless feel quit confident that the stylohyoid ligament is causing significant compress in my throat.
Dr Alessi really seemed to dismiss the notion of the styloids and ligament causing any problems. He said that the standard diagnostic tool to determine Eagle syndrome is to inject lidocaine into the stylohyoid ligament. If the pain goes away, you have Eagles and if it doesn't, you don't.
He did inject lidocaine into that ligament with no improvement. But I don't understand why I should expect to feel any improvement if my symptoms are all vascular from significant compression? I don't buy the argument that everyone with Eagle's sees huge improvement with a lidocaine injection to the stylohyoid ligament.
What do you think about this? I have substantial vision problems, dizziness, pain when I turn my neck and feeling like blood flow is obstructed to my head all the time. There are not too many plausible explanations for what could be causing this except the Styloids and stylohyoid ligaments. But I am having the hardest time finding any doctor who feels the same way I do and is willing to remove them. I don't have any test that conclusively proves that the styloids are causing compression and pain. But I don't think that is uncommon? You can feel the bones in my throat and I have many of the symptoms of Eagles. That should be sufficient I would think?
Or maybe the doctors are much more reluctant because doing surgery a second time is much more dangerous?
What do you think? If you have any suggestions for doctors in California, I'd appreciate a reference. Even someone outside of California would be helpful. Maybe I could talk to someone on the phone who could provide some answers?
Thanks so much.