Hey everyone! So I had surgery back in 2021 for my Eagles syndrome and they removed over 6 cm of Bones from both sides of my throat and shaved it down at the styloid process as well. Everything got much better I mean before that it was at a point that I didn’t think I’d keep going but after surgery it’s much better and nowhere near the pain I used to have.
Then this past December I fell while holding my one-year-old daughter down some steps on to straight concrete and when I fell I went from four stairs up knees first onto concrete and she was going to hit her head so I had to turn my body so that my baby didn’t hit her head on the concrete and so when I turned I hit the back of my head and neck on the concrete and actually passed out and I have no clue how long I was passed out. My knees are still messed up and I’ve been having weird near fainting or actually fainting spells since then. I used to have these a lot before my Eagle syndrome surgery but I didn’t really correlate them.
In March I decided to ask my surgeon to check and see if I still had bone left over in my throat and to their surprise they looked at this new CT scan with contrast and saw that there was a thin elongated calcification within the soft tissues distal to the styloid process on the right measuring 1.5 cm interposed between the external and internal carotid artery branches. They said that it is in such a sensitive spot that were hesitant to operate on it. I’ve sent him a new message letting him know of my new symptoms to see if that would change anything if he would want to go back in and try to remove it or what he thinks the best option would be.
I also had emergency gallbladder surgery 3 weeks ago and I’m still having extreme pain from that swelling and there is an edema at the incision site but they told me that it would heal itself internally. And a week before that I had a kidney stone which was probably up there with a pain level the eagle syndrome is. And I never thought anything would amount to the eagles syndrome pain.
And for reference my ego syndrome diagnosis came after a bad chiropractor adjustment where they snapped my neck and broke the bone in my throat that they did not see on the scans that they took and it nearly sliced my artery so I’m assuming what happened was the piece that broke off whenever they snapped my neck and it broke is what got stuck in that location in between my arteries.
Also in no way do I blame my surgeon I know that he did his absolute best and their team did as well. And that things like this can happen with this rare disease. And he has been very helpful through everything.
I guess I’m wondering if anyone else has gone through this? Not regrowth but a piece left over in a very sensitive area and if you have gone through surgery again to get that removed or if there are other ways you can navigate the pain, dizziness, fainting spells, vision changes and just all of it. I ended up in the hospital after one of the fainting spells and they were wondering if it was due to undiagnosed POTS or the Eagles Syndrome.
I’m terrified of driving, especially with my now two year old in the car and I just don’t want to risk something happening. I also have severe PTSD from the fall in December. It’s slow motion in my head the moment we tripped on the stairs the moment I’m falling the moment I know she’s going to get hurt so I go knees first to hold her back but then with the momentum of the Fall I know we’re going to keep going so I have to turn my body as fast as I can so she doesn’t hit her head because I was holding her on my chest and I mean it’s like I start crying just thinking about it.
I can’t work, because I never know when it’s going to happen and I’ve also been dealing with extreme nausea which I think is from the gallbladder surgery but the medicine they gave me isn’t helping me. It usually happens when I get up too fast or I turn my head a certain way or when I’m laying down on the bed and I wake up in the morning and I have to just kind of sit there and breathe through it. And I get confused in a way where it’s like that dizzy feeling and you just kind of have to kind of stop for a second and remind yourself that you’re okay and that it’s just going to be a few minutes and then you can get back up because usually in those moments I’m on the floor because I start sweating so bad that I feel like I have to lay down on the floor.
Anyway this was a very long post so if you made it this far thank you and I hope I can get some type of advice from some of the other members here.
Thank you!!
