Yes thank you. I had looked up TOS because my vein swells in a massive lump under my collar bone and I feel like something is catching.
My vascular symptoms feel like they start from there. For example if I did pull ups in the gym (when I could go to the gym) I started to feel something was wrong in that area.
After I collapsed with stroke symptoms I felt like something was travelling up my neck and behind my eye and I had to lie flat quickly to resolve the feeling. It felt very vascular at the time and took months for that feeling to stop.
I’d dismissed TOS as I do not have arm symptoms or numbness. I will look into it again but I’m guessing it’s another thing the NHS do not help with😢 know it goes with EDS. I will also have a look on here and perhaps the physio I spoke to Sunday will be able to advise. Feel like Thank you