Hi Eagle1,
Thank you for your update. I’m so glad to hear that you have confirmation of the major cause of your symptoms - IJV compression, but am sorry it’s a bit of a complicated case.
We have quite a number of members who have/had C-1/styloid compression. In some of the cases, getting the styloid removed was all that was needed to end the compression but in others, the C-1 needed to be shaved down or otherwise modified to allow more room for the jugular vein. There are very few surgeons in the US who do the C-1 surgery. TheDude sent us link to a YouTube video of a C-1 surgery that was done by a neurologist in Arizona. He went in expecting to remove the styloid but found the problem was compression by a nerve & the C-1. Barrow Neurological Institute would be a place you could try contacting if Dr. Hepworth feels he can’t be of help.