New Diagnosis - Looking for feedback on providers near Boston

General
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Hi everyone,

I am 31 years old and have had a feeling of ear fullness on my left side since June (about 4 months). The area behind my ear is also tender. I have some of the other symptoms such as headaches, dizziness, and fatigue. I have seen 3 different ENTs who said nothing was wrong with my ear and have had an MRI of my neck and CT of my temporal bones/sinuses. The ENT originally said that I had TMJ, however my jaw is not sore and PT for TMJ has not helped.

I recently saw a neck specialist and she is suspecting that I have eagle syndrome. She ruled out other issues with my cervical spine with a second MRI specifically of my cervical spine. It is challenging to see my styloids on the imaging (both MRIs and CT) based on the imgaes presented. I may need to get a second CT specifically to look for eagle syndrome.

I wanted to see if anyone has reccomendations for providers in Boston or really anywhere on the East Coast. I have seen reccomendations here for Dr Annino and my current provider is going to try to consult him directly since he is within the health system. I also want to start exploring a second opinion as I know there are long waits with some practices.

Thanks,

Katie

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You can also use the search function for info about doctors in your area if you’ve not done that already, & if you don’t get many replies about specific doctors…
Given your symptoms, as headaches, dizziness & ear fullness can sometimes be caused by the styloids compressing blood vessels, it would definitely be worth having a CT with contrast done if you’re thinking about having more imaging? If so, I would specifically request that the CT is timed to capture both the arterial and venous phases to check for any compressions.
If you are able to travel, as you’ve mentioned the East coast then Dr Costantino in NY or Dr Cognetti in PA would be good to think about seeing. Dr Cognetti does have a longer wait I think. They are both experienced with vascular ES if it does turn out you have that :hugs:

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