Hope you don’t mind but after reading this site I decided to push for help. I’m a 40 years old male, from London UK, around 7-8 years ago this all started, nearly suddenly if I recall, lots of suffering including pains on left side of neck from jaw up to ear, pain at back of neck, inflammation on left side of neck (that stayed inflamed), harder and more hurtful Adam’s apple, occasional feeling of possible foreign object in left side of neck, swallowing has become harder, white spit/mucus seems more pronounced and thicker, occasional vertigo, some pressure in ear too. What was worse was the feeling tired all the time, especially in the mornings and was getting worse, first took half an hour to feel awake, then as the hers went by even after a few hours of being awake still had no energy to get up. Noticed this affected and gave me a lack of concentration, feeling that I have much less energy since this all started causing some anxiety and depression and stress too.
I went to see so many doctors over the years, general, ent, did tests like MRI and ultrasound. One doctor told me I’m getting old and it’s all in my mind and learn to live with it. That stopped me getting help for the last 2 year but I suffered so much, not even knowing what’s wrong with me made it worse.
So I decided enough is enough, saw some more doctors, and a nice neurologist suggested multiple tests one after another, and the last test, a CT Scan (3D or something), made him call me and say he thinks he found my issues but as he didn’t specialise he couldn’t help me further but wished me good luck. He wrote to my Gp and a copy to me, as following. “CT of temporal bones and Skull base has shown elongated and partly disjointed calcified styloid processes bilaterally, and in my opinion without diagnosing, this ‘may’ be the cause of the many discomforts this gentleman has been having for many years”.
Question is, does this sound like Eagle Sydrome and if so does bilaterally mean I have it in both sides even though my left side feels bad? My GP said he’s happy to next recommend me to whoever I want to see next (and I have private medical) but said that the next step is up to me.
What should I do next? I feel comforted in knowing this all, but I don’t have access to the CT, maybe I should get a copy, as don’t know the length of this styloid, and have no idea what my next step should be.
Any help would be great. I need some more comfort