Hi Hellebore, & welcome!
I do despair that a radiologist could look at those images and say it’s normal ![]()
your styloids are both elongated, the left one is incredibly long!
I’m sorry that I’m not able to annotate the images for you, but I agree you do have IJV compression, good spot, they’re bilaterally flattened, the left side particularly so looking at the axial image (1st image). Both are pinched between the styloids and the C1 processes, in the 2nd and 3rd images it looks like the C1 processes are significant in the compression, so I think you may need a C1 shave to feel the full benefit of surgery. They’re not the clearest of images, but certainly good enough to spot the IJV compression!
So I think it’s worth getting at least one opinion from one of the doctors who are experienced with Vascular ES; Dr Hepworth in CO, Dr Nakaji in AZ, Dr Costantino in NY, Dr Cognetti in PA and Dr Lui in NJ. Some do online consults, it’s certainly worth travelling to have surgery with one of them, as this is a trickier surgery it’s best to consult someone who really understands!
There’s a video by Dr Costantino posted by @carina which explains about the compression, you might find this interesting:
Dr Costantino IJV compression and surgery - Symptoms and Treatments / Doctor Information - Living with Eagle
I hope this helps & that you are able to see one of these doctors!
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