Hi & welcome! I have sent you a welcome message with info about the forum, but you beat me to it by posting!
I’m sorry that Dr Elliott wasn’t as helpful as you hoped- he is the best doctor that we know of in Australia doing surgery for Vascular ES; your symptoms do sound like the ones commonly experienced although if it’s your non-dominant IJV which is compressed most VES doctors would say that the body would usually compensate. But we do see members with not very severe compression who are very symptomatic, and others with quite severe compression who don’t have many symptoms!
The vagus nerve in alongside the IJV, so it could well be that you are getting symptoms from vagus nerve compression. And ES is a known cause of Glossopharyngeal neuralgia.
Dizziness/ off-balance feeling can be common with IJV compression, although fainting is more common with carotid artery compression, especially if it happens with turning your head in certain positions- it is possible to have both.
So surgery, if the styloids are removed high enough and close to the skull base, could well help…
We have a list of doctors familiar with ES, here’s a link:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
Dr Elliott is the most experienced doctor that we know of, along with Dr Rao, although he has turned down another member for surgery who seemed to have IJV compression . There are some other doctors on the list in Australia, you can use the search function to look them up to see if others’ experiences. And hopefully some Australian members will chip in & give you some advice & support 