I want to thank you for accepting me into this group!! I can already see there is a wealth of information to be learned from a great group of people!!
My story…I was in my usual state of health (pretty good health) until May, 2019. In May, 2019 I had throat surgery for a parathyroidectomy (1 parathyroid gland removed due to benign tumor). Prior to this surgery, I had a history of 1-2 migraines per month for man years. After this surgery, the migraines became severe/debilitating and daily. I kept the headaches at bay for a while with Botox, meds, etc. However, the past few months the headaches have been debilitating and daily. The headaches are only on the right side.
Along with the headaches, I have moderate - severe pain right side facial pain located in the following areas: right side base of tongue, under the right ear following under the jaw line a bit, and the pain radiates to the back of the upper neck (basically around the base of the skull) and up to the right temple and eye. I also have right sided upper chest pain (verified by extensive testing to be non-cardiac) that can also radiate into the shoulder, and also have the sensation there is something on the right side of my throat. My other symptoms include: lightheadedness, GI symptoms (diagnosed as mild gastroparesis). The right facial/throat pain basically feels like someone put a vice grip in that area.
I’ve had a lot of medical intervention and the only thing that shows up is mild gastroparesis. I even saw the gastroparesis top specialist in the USA at Cleveland Clinic (Michael Cline, MD). His comment was, “I’m not sure what is making you so sick but I don’t think gastroparesis is your biggest problem”.
I know my own body and something is going on. The level of pain and “vice grip” feeling is not normal, but all the doctors just want to push it off onto migraine. This is not a migraine. It all starts with the vice grip pain and hours later turns into a headache when I can’t get relief from the pain. I’ve lost a lot of weight because the pain causes nausea and it’s hard to eat.
I’m really unsure where to turn or where to go to. Any suggestions would be appreciated. I’m quite ill but none of my medical team here is listening.
A few questions I have:
*Is a CT without contrast enough to diagnose Eagle Syndrome?
*Has anyone had luck transforming their CT images into 3D using Radiantviewer with a Mac? If so, would you please coach me on how to do that?
*Is this condition gradually progressive for some people (especially if undiagnosed and/or haven’t had surgery)?
Thanks in advance for any help.