I had bilateral jugular compression, which caused Intracranial Hypertension, so I sympathise with you…Laying down was worse for me, so I had to sleep propped up, that’s worth a try if you haven’t already. The head & ear pressure would increase through the day & were at their worst in the evening. I had pulsatile tinnitus too, on any exertion, not that I could exercise, it was just going upstairs etc. And some hearing loss on my worst side. There is a research paper in the research paper section written by Mr Axon & Mr higgins from the UK who are very experienced with jugular compression, pulsatile tinnitus, Intracranial Hypertension & dehiscense.
Some of your symptoms- anxiety, palpitations- could be due to the vagus nerve being irritated by the styloids- it’s close to them & a common one to be affected.
I’m a bit confuse that they mention CSF hypotension, maybe someone with more knowledge can correct me, but usually compressed jugular veins cause raised intracranial pressure, which only then leads to hypotension if there’s a leak from the pressure…it’s believed that the increased pressure can contribute to wearing of the bones & the dehiscence…
To encourage you, I had surgery to remove the styloids, & it resolved my jugular compression & the horrible symptoms which go with that. So there is treatment which can help, although sometimes if the C1 processes are causing compression too sometimes a C1 shave is needed as well. It’s definitely worth you getting in touch with a doctor experienced with vascular ES- Dr Hepworth in CO is very knowledgeable, he’s not taking new patients at the moment but keep trying his office to see when he is. Unfortunately one of the other doctors experienced with this, Dr Constantino, is on leave right now . Dr Fargen in NC has trained with Dr Hepworth and I believe is starting to do the surgery, here’s a link to a discussion you might find interesting:
A little about my story - General / Eagle Syndrome Stories - Living with Eagle
Although not vascular ES specialists, Dr Cognetti in PA and Dr Hackman in NC are very experienced surgeons. I might have forgotten someone, hopefully others can chip in if I have !
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