Hi & welcome to the site!
If you’ve not read this info about symptoms, there’s quite a bit of detail about possible causes here:
ES Information: Common Symptoms And Possible Explanations For Them - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
But briefly, some of your symptoms sound like they could be from vascular ES- if the Internal Jugular Veins are compressed by the styloids, this can cause head pressure, light headedness/ off balance feelings, visual disturbances & the pressure at the back of the head can be caused by other veins (called collateral veins) which swell to try and help with taking the blood flow from the brain. A CT with contrast should show this, ask for it to be timed to show the arterial and venous phases.
The styloids can compress the IJVs between them and the C1 vertebral processes, lots of members also have some instability and this can cause the C1 to shift a little out of alignment, which can increase the compression…
The vagus nerve runs alongside the IJVs, so this often gets compressed too, which can cause anxiety, heart arrythmias, possibly temperature irregularities and digestive issues like you mention. We are seeing more members with other vascular compression syndromes too, for example Thoracic Outlet Syndrome where blood vessels or nerves can get compressed at the top of the neck & into the chest, & this can cause blood flow issues with the arms, numbness/tingling etc. Might be worth reading up on as well, or it could be the accessory nerve which can cause shoulder/ arm pain or weakness…
Given that you are having some visual disturbances, it might be an idea to see an ophthalmologist too, as when the IJVs are compressed it can increase head pressure (intracranial hypertension) which can put pressure on the optic nerve. It’s a good idea to check if the nerve is being compressed as this could possibly cause permanent damage if left untreated…
Unfortunately it’s hard to tell what symptoms are caused by ES, & what might be CCI as there is quite a bit of overlap…It’s best to get as much info as possible so if you can get a DMX that would be helpful, and then to get at least 2 consultations from doctors as to the best way forward. As it sounds as if you could have vascular ES, & if your CT confirms this, then it might be best to see one of the doctors most experienced with this if you can- like Dr Nakaji in AZ, Dr Costantino in NY, Dr Hepworth in CO, or Dr Cognetti in PA.
I don’t know much about the Lyme symptoms, we have had some discussions about that & mold sensitivity, so you could use the search function to look up discussions if you don’t get many answers…
I hope that after being dismissed for quite a while, you can get to the bottom of what’s causing your symptoms!
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