Opinion on eagles diagnosis

[Isaiah_40_31]

You were quicker to post than I was to send my welcome email . I suggested there based on your lack note about symptoms that you might have IJV compression because of the nature of your neck injuries, but I’d say from the information you just posted, that is not among the causes of your symptoms. It sounds like your symptoms are nerve related.

Most of the symptoms you’ve listed are among those we have seen with an ES diagnosis. No two people have the same ES symptoms set. We have members who’ve had larynx, hyoid & styloid issues all operating to cause the array of symptoms they’ve had though it’s been a while since any of them were on the forum. As your ENT suggested, the laryngeal hypersensitivity & swallowing challenges could be aggravating each other. Swallowing issues are common w/ ES & are caused by a couple of nerves - the glossopharyngeal & vagus. The hypoglossal & glossopharyngeal nerves both affect tongue function & the GPN can contribute to burning in the mouth. Your facial spasms are most likely being caused by your facial nerve being irritated though the trigeminal nerve could also be involved depending on where the spasms are occurring. The tightness/constriction under your chin is very possibly from your digastric muscles as you suggested. They also play a major role in swallowing. I had trouble from mine from ES.

@alexandra.p

I’m struggling to know which specialist to turn to and would love recommendations for someone who could consider the whole picture, including the concerns about intubation…I’m struggling to know which specialist to turn to and would love recommendations for someone who could consider the whole picture, including the concerns about intubation.

Dr. Osborne would be a good choice with the challenges you have, but Dr. Cognetti in Philadelphia, PA & Dr. Hackman in Chapel Hill, NC, are both very experienced with ES + hyoid bone & possibly larynx surgical work. Both do telehealth consults so you wouldn’t need to travel initially to see them.

•Dr. Trevor Hackman, UNC Ear, Nose and Throat Oncology Clinic – in the N.C. Cancer Hospital, 101 Manning Drive, Chapel Hill, NC 27514, (984) 974-6484, Trevor G. Hackman | UNC Health

•Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). David M Cognetti MD | Jefferson Health Does do online or phone consults.

Here are some links that might be helpful:

Clicking Larynx Syndrome

Clicking larynx syndrome - a diagnostic and surgical challenge - PubMed (nih.gov)

Finally diagnosed with clicking larynx syndrome!

GUYS!!! I just returned from my appointment with Dr Karuna Dewan a few hours ago and I cannot begin to describe the happiness and relief I feel right now!! First off, her office staff is superb. Everyone is SO kind. I got walked back to an exam room and had to wait a bit while she looked at my imaging. One of her assistants came in the room and asked me how I found her because I came from so far away. I told him about this lovely forum!! Then he told me my symptoms match clicking larynx to a T!…

ES Information: Common Symptoms And Possible Explanations For Them

ES Information: Common Symptoms And Possible Explanations For Their Causes: Disclaimer: These answers to common questions were put together for new members to gain a head start in finding information about Eagle Syndrome; to give you confidence to discuss issues with your medical team and to encourage you to research issues further for yourselves. It was compiled by a volunteer Moderator, who does not claim to be a medical professional, merely an informed observer and patient! The sources used…