I’m so sorry that you have been through MVD surgery with no relief of the pain, especially with the infection too…I presume that if you’re now exploring ES with Dr Jian that he feels you should have improved by now, although I would say that some members with nerve pain have seen improvements over a year after surgery, so your surgery wasn’t that long ago and having had complications maybe there still could be an improvement?
I didn’t ever have throat pain or trouble swallowing, the more well-known ES symptoms; I had TN and pain turning my head, & ear pain at times, so ES doesn’t always cause the throat pain. Unfortunately it’s not easy to tell if ES is the cause without having surgery; it’s not a good diagnostic tool but some members have been able to feel their styloids at the back of the mouth, around where the tonsils are, or under the jaw line, & pressing on them can flare symptoms up, so maybe you could have a poke about & see if that causes any GN twinges?
There are some research articles about GN being caused by ES, here’s a link to one although I can’t view the whole article:
The glossopharyngeal nerve, glossopharyngeal neuralgia and the Eagle’s syndrome–current concepts and management - PubMed (nih.gov)
There are links to other ones from this article too which might be useful…
We have had another couple of members who have had MVDs as well, here’s a link to @1speechpick 's discussion, maybe you could message her (click on her avatar to send a private message)
Update after MVD - General - Living with Eagle
I hope that you can work with Dr Jian to find treatment which helps, he sounds like a thorough and kind doctor!
3 Likes