OK I asked for it and now I'm getting it. Any comments, questions, concerns will be greatly appreciated.
After 15 years, 2 failed surgeries, and 20+ reluctant doctors I kinda was giving up again. My medical group denied my latest referral to UCLA because they said they had a group at Cedars who could do the surgery in plan. I gave that no confidence. Yesterday, I met with an ENT for the first time, Dr. Henry Chen, who looked at my CT's, palpated my styloid (that always hurts for about 2 days following) and is going to schedule surgery for August probably!
It really bothers me that after all this wait, this took so little - is it a dream? This could have occurred 10 years ago after the last botched attempt.
I think I would rather have just complained until I died. Surgery scares me and with my ES history I have no idea what they will find in there. He wonders too. I appreciate his honesty about the condition of my neck after 2 surgeries.
He is a great doctor only judging from the things he said:
Intraoral this time since the scar tissue on the outside of neck will pose an access problem.
Offered to conduct a balloon shunt? on my 2 carotid arteries to see what would happen if my left one needs to be pinched off to compare blood flow and see if right carotid was able to handle flow alone. I told him that test didn't really matter since no matter what happened during that test, if it needed to be done during surgery it would still need to be pinched off so why bother seeing what would happen first with 2 more initial surgeries. Plus he asked if I have any family history of heart attacks, strokes or any other blood flow issues. I don't.
He showed me on the CT what he will remove. It only seems 1-2 cm longer than the one on the right but it does not feel that way-when I mentioned that he thought I was funny trying to teach him anatomy. A bit defensive but since I've lived with this for 15 years he can listen to my concerns and questions about what I feel in my mouth.
Doctors are sensitive.?!
He has done it before with no complication-am I supposed to ask for his ES resume?
He's from Colorado so that's a plus to me.
He said he will need to remove my left tonsil to get access. Anybody had to do this in conjunction with styloid removal?
I've heard that adult tonsillectomies hurt but I guess I'm having my throat cut open from the inside so a little more pain is insignificant?
I don't feel I'm going forward with this uninformed. Yet.
I'm so happy?
Please raise any questions-I might be so glad I'm blind to issues.