Oh no, I’m so sorry that Ben is having symptoms return, after all he’s been through…We’ve had some members who felt better after their initial styloidectomy/ C1 shave, but then relapsed and needed the second side operating on, but not so common to go backwards after the second side. I wonder if it’s scar tissue forming from the surgery? There have been some discussions about cold laser therapy which can help, but I presume Ben would have to keep very still for that, so that may well be an issue?
It might otherwise be worth trying PT for Ben in case he has muscle tension which could be contributing? Would that be possible for him, obviously if you can avoid more invasive testing then it’s worth trying conservative methods first… @BraveKat also mentioned a treatment called Neubie, which is a very gentle massage treatment. And this organisation has been mentioned as helpful post-surgery to get muscles back working again:
Programs and Remote Services — PRISM
Some members have had narrowed veins in the brain so have gone on to have stents in these, here’s a video that @BirdsOfSore posted:
“Intracranial Venous Stenting for Idiopathic Intracranial Hypertension” - Kenneth C. Liu, MD
I understand your worries about Ben being on blood thinners; there are some supplements which some members have tried instead, whether that might be safer for him? There’s info here:
I hope others can chip in with things which have helped them…