Hi everyone :)
I'm so sorry that we all have to meet on such a painful issue. I feel for all of you going through this and you all have my sympathy.
Here's my story:
I stupidly took up smoking about early 2011 and a few months into that I had a bad bout of tonsillitis. Ever since then I have had this dull, throbbing intermittent pain on the left side of my throat only. I noticed when I swallowed liquid, I literally could not feel anything on the left side of my throat. I could feel the cool sensation on my right side but not my left. My throat was always somewhat sore but nothing I couldn't push through. I went to my ENT to make sure it wasn't the dreaded C word. He scoped my throat and couldn't find anything wrong so I just continued living with it. Over the last couple of months I've had a lot more symptoms start popping up.
I have had ear pain on top of my initial symptoms, and ear fullness; I also get ringing in my ear and it feels like something is crackling when someone with a high pitch voice is speaking with me.
I've also had this pain in my neck (all symptoms only on left side), the pain in my neck is at the front a little below my jawbone and closer to the center of my neck but still left side.
I went to ENT about my ear pain and he says everything is normal and my hearing is above normal, he suspects TMJ is causing the pain. This was about 2 months ago I saw the ENT.
I then had some dental work done and started having extreme facial pain. I'm working with my dentist to see if there aren't multiple factors for the pain.
I told my GP about all of this and he thinks that all my pain is psychosomatic...very frustrating.
I started to go to Eagles syndrome when I was reaching back in my left tonsil to investigate (since doctors wont), I felt what seemed to me to be a bone or piece of cartilage literally poking through my left tonsil.
Now I'm extremely worried about it snapping off and hitting the carotid artery and killing me in my sleep...I know it seems exaggerated but it's a legit fear for me.
I've been avoiding my GP in hopes it was of dental origin but I'm going to be making an appointment with him next week. The doctors never take my pain seriously so I'm expecting some bs from him. I'm going to demand to see my ENT who will probably give me even more trouble because he doesn't seem to be the type to think anyone else has anything worthwhile to say.
I'm wondering how I should bring this up with him...like give him the exact symptoms and let him figure it out or tell him what I think it is...because doctors are very egotistical and won't listen to their patients...they will only take things seriously when the patient acts ignorant and desperate for their help.
Anyways, that's where I'm at. Please let me know if you think this sounds like ES and how to move forward with my ENT if so.