Hello fellow Eagles friends I hope this discussion finds everyone well!
I have had two follow up appointments with Dr. Forrest in Columbus, OH since my extraoral surgery on August 8th. All is super well, there were no complications, no surprises and the surgery was a complete success! I cannot begin to express how it feels to be Eagles free, have total blood circulation to the brain and have no impingement on the cranial nerves! The first month and a half after surgery my energy levels flew off the charts and I didn’t know what to do with myself!!! Until…I smacked into the wall. I hit it so hard it felt as if I’d never recover.
I found myself isolating from all that I loved. I lost my energy, my lust for life. I dropped off this site here, never left my room, barely ate and physically I felt like dying. My “headache” was back, full force and the fatigue and tinnitus was worse than ever.
I scheduled another appointment with my surgeon and the night before the appointment I sat down with the god of my understanding and asked for guidance. Praying that “I get out of the way” as I sit down with pen and paper as I write down my symptoms. 1. My own voice in my head vibrates. When I whisper, I sound like I’m yelling 2. When I’m reading in a quiet room I can hear my eyeballs moving back and forth like someone filing her nails on an emery board 3. When I’m jogging or even when I’m walking I feel like I have to do it gingerly because in my head I sound like a herd of elephants 4. When I blink my eyes it sounds like a rocket taking off 5. I have tinnitus in both ears but I really want to cut my right ear off like Van Gogh
I had a list of 18 things but Dr. Forrest said, “Stop right there! Why didn’t you tell me this before?” Ironically I thought all of this was unimportant and irrelevant because I had been telling primary care physicians and neurologists this for years and it had been dismissed. Dr. Forrest is an ENT and also, ironically, I had been in 2 other Columbus area ENT offices in the last 3 years and vocalized the same symptoms and had been blown off. He immediately said, “Amy, we need to do some testing on your ears!”
Well friends, here I am a couple of weeks later with a diagnosis of Superior Canal Dehiscence. It occurs in approximately 2% of the population. I’m wondering what the likelihood of that 2% has had Eagles also? Or if there are any stats on that, or if I’m just over thinking lol! Believe me y’all, I’m not complaining fo real I’m absolutely filled with gratitude to finally, once and for all, to have ALL of the pieces fit and have the riddles answered :))))
I’m looking at another surgery in 2014, wow. Does anyone have any information or experience with this condition?