A CT of the head and neck is the best scan to show the styloids to get diagnosed. If you think you might have vascular ES then a CT with contrast would be helpful.
Here’s a link to the up to date Doctors List in the Doctors Info Section:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
There’s a couple in Italy, one in France, & a couple in the UK (Mr Axon & Mr Hughes) who would see a patient privately.
We don’t know of any in Portugal yet, hopefully you’ll get an answer to your post on the other discussion. Otherwise it’s worth seeing if you can find a Skull Base Surgeon or a Head and Neck cancer surgeon in your area?
1 Like