My symptoms are quickly getting worse the past two months, I have to wait until the end of October to see my neurologist to test out new medications, my ent thinks I have trigeminal neuralgia and my primary care doctor doesn’t think eagle syndrome is real. My mental health is dipping idk how much longer I can take this.
@Figuringitout - I love your graphic! It provides a great visual of your pain. I’m really sorry your symptoms are getting worse, & you’re getting the run around from the doctors you’re seeing. Please try to get an appointment with one of the following doctors as that’s how you’ll get help & be able to move forward. As long as you keep seeing the doctors who don’t know about ES you’ll continue to be frustrated. You may need to travel a distance to get the help you need as many of our members have need to.
In your state, Dr. Rui Fernandes has helped several of our members as has Dr. Anthony Bunnell:
•Dr Rui Fernandes, University of Florida and Shands Hospital, 653-1 8th St W, Jacksonville, (904) 383-1018, https://hscj.ufl.edu
•Dr. Anthony Bunnell, UF, 653 W. 8th St., Jacksonville FL, (904) 244-3216 Anthony Bunnell, MD, DMD, FACS - UF Health Jacksonville
If you’re able to travel outside of your state to see a good ES doctor, there is one in Georgia who has gotten an excellent review from one of our members who had bilateral surgery done by him:
•Dr. Nelson May, Wellstar ENT, 699 Church Street NE, Suite 340, Marietta, GA, (678) 355-1620. Michael Vick, MD - Otolaryngology | Wellstar Health System
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I’m sorry that you’ve not been helped so far, & I can relate to the pic you posted! I don’t understand why either the ENT or your PCP can’t prescribe you a nerve pain medication? If the ENT has diagnosed you with TN, ES can cause this anyway, & given your symptoms it shouldn’t be hard to go along with that!
But I agree with @Isaiah_40_31 , if you wait for another month to see your Neuro, & they don’t know about ES that’s more time wasted. If you can see a doctor who knows about this, it would be more helpful.
We also suggest that you print off a research paper which supports your symptoms- there are some which mention TN- and show that to your PCP or ENT, they might be able to get you started on some medication? I’m UK, so the system is different, but my GP was able to prescribe me a nerve pain med so I could start it before I saw the otolaryngologist.
Sending you a hug 
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@Figuringitout - Here’s the link to most of the Research Papers that have been posted on our forum over the years:
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