Two different diagnosis

Not surprising that recovery is a bit slower then, extra hugs! :hugs:

My first surgery (R styloid) was the worst recovery for me. Though my throat was only sore for the first week or two, it felt really swollen for close to 6 weeks & maybe longer. I remember feeling super tired all the time, too, even on my good days but on one morning, almost exactly 2 months after that surgery, I woke up feeling like my old self. Energy returned over night & symptoms began reducing/disappearing more obviously. That said, it was also near that time that the symptoms from my left styloid started kicking up. Go figure. :joy:

My recovery from the second surgery was quicker & easier for some reason. It may have been because half my tongue :tongue: was paralyzed after my first surgery & took almost till my second surgery to ā€œthaw outā€ & start acting more normally again.

Have you tried sucking on ice chips or drinking ice water to help your throat at all? Some people have mentioned sucking on fruit popsicles was helpful & tastier than cold water. I think there are also lozenges for sore throats which sort of numb the throat. You can buy them OTC from any pharmacy.

If your sore throat & the swollen feeling persist, you could ask your doctor for a course of dexamethasone or prednisone. Steroids are powerful anti-inflammatories & might just give your body the healing jump start it needs in this case. Dex has less side effects than Pred but works just as well. Usually it’s a 10-14 day course that is Rxed.

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Hi guys it’s been a minute. Since I had my surgery in April I have had migraines come back swallowing issues neck pain and extreme nerve pain. No one had answers for me seeing I had both sides done. My pt and chiropractor think I have extreme muscle spasms in my neck and upper shoulders. My neck feels like a rock and will not move. I’ve had a mri and scan and they don’t see anything. My surgeon isn’t even sure what to do now seeing I’ve been in pt for months now and nothing is changing. Wondering if anyone has gone through something like this? I’m going to see a pain specialist for trigger point injections and my surgeon said he doesn’t recommend this but pt and chiropractor said I need them. They think with all the hard inflammation things are pushing and pulling on nerves my throat and causing the nerve and swallowing and migraine pain. Pretty much all on the right side which is the side I had the hyoid bone and styloidectomy surgery in within a few months of each other. I am starting to loose hope cause I’ve been in pain so long and no one understands. Thinking about doing some red light therapy if anyone has ever tried that? I just need some of this to break down I can’t even crack my neck and everything is extremely tight. Don’t know why o have dysphasia now again but I’m wondering if it’s just all pressing on my throat even though the mri shows it’s not I guess. Any thoughts would be appreciated.

I’m really sorry your second surgery has seemed to make things worse for you. There have been some cases where ES symptoms have hung on for quite a number of months before beginning to resolve, but that is not the norm. Have you considered getting an Rx for a muscle relaxant to see if that helps at all? Flexeril & Baclofen have both been mentioned on our forum as being helpful.

I’m also wondering if your hyoid somehow got out of alignment due to having only one side shortened, & if so, that could triggered the swallowing issues & neck pain. We had a member who had severe swallowing issues after a revision ES surgery, & it turned out her hyoid had tipped so it wasn’t level anymore. That, in her opinion, is what caused her symptoms & may have been verified by a doctor (can’t recall). I don’t think the hyoid being ā€œunlevelā€ is something doctors look for when considering swallowing issues & neck pain so it might be worth it to convert your recent images to 3D so you can see the position of your hyoid.

I don’t recall who you saw for your hyoid surgery, but if it wasn’t Dr. Dewan in Louisiana, and you do see something not right with it, having a consult with her might be helpful.

•Dr. Karuna Dewan, Ochsner LSU Health Shreveport - Academic Medical Center - Specializes in Hyoid Bone Syndrome surgeries
1541 Kings Hwy, Shreveport, Louisiana, 1-318-626-0050
https://www.ochsnerlsuhs.org/doctors/karuna-dewan

I’m assuming you didn’t have any IJV (jugular) or ICA (carotid) compression that was neglected during surgery as vascular compression is notorious for causing migraines, thus, your migraine pain could be coming from your facial or trigeminal nerves.

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So I seen Dr. Ramirez I’m here in Michigan. He’s been wonderful so far and is working with my pt, chiropractor, and neurologist to come up with a plan because I think he’s just unsure. I did notice a few weeks ago after them working on my neck using the granston tool that I had this bad pain on the side of my neck when they were done. Then I felt a small lump on the side of my neck, well come to find out he said that’s my carotid artery that I’m feeling. It wasn’t like that prior and it’s painful. From reading on this if the lump grows it can cause many issues if it bursts. I don’t know much about this but I’m wondering if this is why I’m having all these symptoms cause they seem to align with what I’m reading. This is a very extreme headache that came back around the same time along with the swallowing getting worse. This is on the opposite side of where I had the hyoid bone and es surgery. So I’m wondering if I possibly have two separate things going on at the same time? I just don’t know if a bulging carotid artery can cause pain on both sides of the throat and dysphasia. I feel like this whole thing has been so complicated with me and I’m coming to a loss anymore. I’m getting a ultrasound next Wednesday for this so hopefully they can give me some answers and we can move forward to start eliminating things.

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Interesting about the bulge in your carotid. Arteries & veins can get weak spots (aneurysms) that can rupture & cause HUGE problems so I’m really glad you’re getting an ultrasound. Based on the outcome, you may need to see a vascular specialist. The carotid artery can definitely cause pain in the chest & throat area & can cause migraine level headaches when it’s either compressed or compromised in other ways as your perhaps is.

I’m so glad to hear that Dr. Ramirez has stuck with you & is doing all he can to help you. That’s refreshing as many doctors aren’t so kind & helpful once they’ve done their part for a patient.

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I’m so sorry that you’re having all these issues, it’s so rough after having gone through surgery…good that Dr Ramirez at least is trying to make sense of this with you, even if he doesn’t have all the answers… A muscle relaxant like @Isaiah_40_31 suggested is perhaps worth a try, & maybe the injections will help- some members have had botox injections to try & help tightened muscles. Depending on when the symptoms flared up- did you have initial relief after surgery or was this pain constant?- maybe scar tissue could be causing issues? Some members have had cold laser therapy to try & help with that, but you need an experienced practitioner as it has to be not near the thyroid…
Sometimes when people have had the pain & inflammation from ES for a long time, the muscles get over used or under used because of different posture etc & it can take a long time for those muscles to adjust after surgery…
I hope that you get some answers from your ultrasound, thinking of you & sending you a hug :hugs:

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So strangely I had Botox 5 weeks ago and it did nothing not even for my migraines which I think is very odd that’s why I’m assuming there is an underline issue going on. I did Botox last year with the hyoid bone situation before anyone knew that’s what it was and it did nothing. That’s why I can assume that. I did look into cold laser therapy and could not find anyone around me in Michigan to do it. The only thing I found was the red light therapy which is 350$ for about 6 sessions but it may be worth a shot at this point. So my mri showed no scar tissue and I was shocked when I heard that cause my neck is so big I assumed that was what was pushing in my throat. That’s another annoying thing I’m dealing with which makes swallowing hard or painful. Initially after surgery I had relief for about 2 weeks and then something changed quickly. I don’t know if it was the pain meds that I maybe didn’t notice but I’m pretty sure I was good for those two weeks. It started with the feeling of something pushing into my throat and a choking sensation again then led to pain in my neck where my neck feels like a rock and crunches and creeks when you rub on it. Then the migraines and some jaw pain settled in along with extreme nerve pain when I eat hot or cold. I guess we will know more when I get the ultrasound done. They clearly can feel this bubble or artery popping out but what’s strange is that the mri didn’t pick it up. If this is my artery I’m wondering if the symptoms are coming from that and another issue with my muscles spasming.