Two different diagnosis

Thank you much appreciated.

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When you look at that scan where the clips are I can’t really tell myself where they were placed or if this could be what I’m feeling in my throat. The young Dr couldn’t even tell me I know they are small but I’m just trying to narrow things down as both sides are being effected. I literally feel something stuck in my throat and it scratches all day long when I’m talking and swallowing.

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Sometimes the feeling of something stuck in your throat isn’t actually something poking but a nerve sensation, the glossopharyngeal nerve or the vagus nerve, not sure if that’s helpful to know, but it may be you don’t actually have something digging in… I’m sorry that your doctor isn’t helping you any longer, it’s frustrating for you but we often see that when surgery doesn’t help as much as expected & a doctor doesn’t have the answers! And I wouldn’t necessarily take too much notice of other doctors who say you didn’t need the surgery, as many ENTs tell people that with ES when clearly there are styloids impacting nerves & blood vessels. I’m not trying t make light of what you’re going through now, I just don’t want you to feel that you’ve been through all this when you it wasn’t necessary. Sending you a hug and hope that you’re able to get some help, maybe from Dr Dewan :hugs:

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Thank you. So my question is when people have this nerve sensation does it come with really bad pain as the day goes on with swallowing and talking? Also does it cause choking or food to get stuck? No one can really explain why my neck is so hard down the muscle but I’m sure that Dr was right with the jugular vein compression. I feel it on both upper sides of the hyoid bone and when I press on that area from the outside the pain gets worse. On the right side where the neck is hard I can slightly feel the top of the bone on the inside of my throat but like I said it feels like it’s sitting underneath the skin it’s no longer like the other side free flowing in my throat and when I had that hematoma is when everything changed. I appreciate your help.

@ShelbyH - Some of our members have been diagnosed with Clicking Larynx Syndrome which is caused by excess calcification of thyroid cartilage & the hyoid bone (Dr. Dewan also does surgery for that), & I think that can also cause symptoms like the ones you have.

Here’s a link to a research article about it:

and a discussion on our forum:

Talking & vocal changes is a symptom of ES, yes. We’ve had quite a few members who have had to give up singing, and some who talk alot with their job like teachers who haven’t been able to. Choking is common too, @Isaiah_40_31 found that she did have trouble with this. I would guess that maybe the nerves can interfere with the sensation to muscles needed for swallowing, but lots of members have been referred for swallow studies which usually are normal. (although we have had a few with uneven muscle tone affecting swallowing & making it abnormal)
I wish we could give you some definite answers as to what’s going on, I’m sorry :hugs:

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