UK - Dr Jonathan Hughes - anyone been treated by him for C1 resection

Symptoms and Treatments Doctor Information
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Hello everyone,

My nephew has eagles syndrome with C1 impinging on one of his IJVs.
Looking for a surgeon in the UK who does C1 resection.
Has anyone been to Dr. Hughes in London for this operation ie C1 resection.
Was it successful and would you recommend Dr. Hughes?

Thank you,
Shauna

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A couple of members have had surgery with Dr Hughes, here’s a couple of discussions by them:
Review of UK Surgeon - Symptoms and Treatments - Living with Eagle
Surgery with Mr Hughes London this Friday - General - Living with Eagle

You can always send a private message to the members by clicking on their avatar to ask more info. I hope that you can get some help for your nephew soon!

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Hi Jules,

Thanks for your reply and information. I will look into those links and will reach out to some of his past patients on here.

Thanks again!

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Hello

I’ve just seen this email about Dr Hughes.

I have made an amazing recovery thanks to him and I wholeheartedly recommend him, he is a life saver. 4 years on I am 90% recovered with only occasional flare ups of trapped nerve.

If anyone wants to contact me they are very very welcome.

Julia

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Hi Julia,

Thanks so much for replying to me. That is great that you are 90% better!
What surgery did you get done with Dr. Hughes?
what nerve is causing the flare up and any ideas as to why this is happening?

thanks,
Shauna

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Hello

Dr Hughes did an external stylodectomy and gave me my life back. As a result of the surgery I have a slightly odd bite…which I was warned about, and occasionally that results in irritation of the glossopharyngeal nerve. But we are talking a few times a year, as opposed to 100% of the time. My vascular symptoms have gone completely and I no longer take nerve medication, where at one point I was on three different drugs. My scar was cut into existing neck wrinkles and can barely be seen. I had no post operative problems.

He is such a talented surgeon and a very kind and helpful person. I paid a lot of money to see him privately at the London Clinic through sheet desperation but I am very glad I did.

Julia

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It’s so great to know you’re doing so well, @Julia! Thank you for sharing your experience w/ Mr. Hughes.

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Thanks for coming back on to follow up on your post, really good to hear that the surgery has worked so well for you!

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Hi Julia,

Thanks so much for your reply and for all that information. That is great that you are so much better and can live a normal life.
My nephew needs a C1 resection. Do you know if Dr Hughes would be good for this? His secretary has confirmed that Dr Hghes does C1 resections but I dont know who has had one done with him and how successful it was. I know Axon is supposed to be wonderful at this but Addensbrookes politics seems to getting in the way there.

Do you know if Dr Hughes has a good reputation for C1 resections?

Thanks so much Julia and continued healing to you,
Kind regards,
Rachel

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Hi Shauna,

I would absolutely trust him with my life in any ENT or head and neck capacity. I met Mr Axon but he was unwilling to help me, which is why I went with Dr Hughes and I cannot express how much pain I was in before I did so.

He is such a clever and talented surgeon, with amazing reviews, I would assume he wouldn’t agree to do C1 unless he was confident. He has a very good reputation to protect so I think he will be in great hands. Most of all, he seems to understand the difficulties that these odd head and neck conditions can cause to people and he shows great empathy.

Good luck to your nephew.

Julia

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Hi Julia,

Thank so much. Thats great to know that you find him to be a brilliant surgeon and he sounds like a nice human being. Alot of consultants seem to lack empathy which is so important…
I will tell my nephew.

Thank you so much again,
Best wishes and continued healing to you,
Rachel

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