I posted a few weeks back wondering if I had Eagle's Syndrome. I have a few updates since last time and am hoping somebody can steer me in the right direction or at least give me some confidence.
Basically I've been having a feeling that something is stuck in my throat and also ear fullness for the last 2 years. Worse with eating.
Two weeks ago it seemed to get really bad to the point that I went to the ER twice because I felt like I was choking or couldn't breathe. Both times they said they didn't see anything but gave me something to numb my throat and that made the feeling go away. Since then I've basically just been drinking Ensure and not eating anything at all because I feel like my throat gets tight when I eat.
The ER took a CT scan of my neck with contrast and said they didn't see anything (because I think they are just looking for chicken bones or other things stuck in your throat). I took that CT scan to an ENT doctor today, the one who had suggested looking into ES to begin with, and he showed me on the scan how on the right side my styloid bone is much longer than the left. He also felt my neck and said right where I complain about the feeling of something stuck is the tip of the bone. If I push from the left side of my neck I can feel the lump that is causing the problem move on the right side which he said is because the bone is a U shape.
So I'm getting pretty excited that I may have come across the problem after 2+ years of ENT, GI, Cardio, Lung, etc. doctors doing every test they have on me and saying everything is fine.
1. Does this sound like the presentation of ES? I can feel a small lump in my neck on the right side right where the jaw and neck meet. It moves up and down when I swallow and isn't present on the left side. CT scan shows no abnormalities such as lymph nodes or tumors in this area. Main symptoms are constant feeling like something is stuck in throat (worse after eating), hard to swallow, tight throat, ear fullness after eating, and waking up in the morning with sore throat and ear on just the right side.
2. Is this something that could have been getting progressively worse over the last 2 years or so? At first it was just a minor annoyance mainly after eating, but now it has become something that is impacting all aspects of my life. Just wondering if it somehow started growing too big 2 years ago and has just gotten bigger and bigger since then? Seems strange to me but maybe that's what happens. It started when I was 35 ad I'm 37 now.
3. Should I have any other imaging done? I've heard people talk about going to an oral surgeon for x-rays. I haven't done anything other than a standard CT of the neck so far but that seems to be enough for my ENT doctor to see that it is definitely longer on one side than the other.
4. Where is the best place to go for this type of surgery? Is the surgery pretty successful at fixing the problem? I actually already had a swollen lymph node remove from almost the exact same spot a couple of years ago thinking that might have been causing the sensation. It sounds like the surgery would be basically going right in through that same spot and reducing the length of the bone.
Thanks for your help!