Hi amanda85 -
Here’s the link for the 3D slicer program & tutorial as to how to use it. It would be great for you to take some 3D images to the next doctor appt. You can also request that the radiologist who read your scans measure your styloid processes. He should be willing/able to do that. If you have that info to take w/ you, it will be very helpful.
Sadly, among doctors & radiologists there is wide disagreement as to what constitutes ES - i.e. how long the styloids need to be to say they are elongated, do calcified ligaments count in the equation (OF COURSE, THEY DO), etc. As we’ve said some docs won’t diagnose ES even in the presence of elongated styloids &/or calcified ligs if certain symptoms aren’t also present. Getting diagnosed can be so discouraging!! Keep persevering until no stone is left unturned!!
GO! FIGHT! WIN!
