I found the recent webinar so incredibly helpful!
One question I have is in reference to the lesions they mention from brain to neck. What type of lesions are they referring to? Thanks!
hello what webinar are you taking about ?
could you provide a link
i had recently watched a webinar titled “venous congestion ,brain and neck disorders”
done by the “Venous congestion committee”
i hope this is the link
i am constantly looking for more info and would enjoy watching the one you speak of
i know it has been a while since your post but
@Brandy - I’m so sorry no one answered your question. I just reviewed the seminar, & I believe Dr. Hui was referring to the jugular vein stenosis as a “lesion” in the picture he was showing. That’s not what comes to mind when I hear the word lesion, but in the context in which he used it, that’s what I understand it to be.
How are you doing these days?
@mekanX - Yes! That’s the link. The webinar was held on May 24th this year. I expect you’ll find it very interesting based on your diagnosis.
I am on my third listen and trying to absorb
I can relate to the LP example
Is there a video of the conference they mention having in January ?
No video of the Jan conference. It was the doctors’ initial get together so we heard nothing other than that it took place in HI.
Any thoughts on the brain tissue perfusion ? Was Dr Hui talking about a scan to measure rate of blood draining into the venous system from different regions of the brain? Or showing of deficit?
I have always wondered if functional MRI would be useful?
When the pressure builds from thought provoked head aches, would this would show areas of blood flow back up or high pressure gradients?
@mekanX This is all very cutting edge and the discussion is ongoing. Hep was back in HI this last month, you should ask him about it when you see him! He will give you the best answers, he is a seeker!
Thanks for the reply!
I visited Dr. Costantino in NY this week. I really liked him. I do not have ES but more than likely, jugular outflow syndrome/jugular venous outflow obstruction. I have discounted Dr. Annino for doing any surgery. He was not as thorough as Dr. Costantino. He introduced me to his neurosurgeon, Dr. Tobias. He ordered a brain mri to eliminate MS (I do not think I have that as I have had a spinal tap and a previous brain MRI). He also wants to see on that brain MRI my dominant sigmoid sinus. He spoke of the spinal accessory nerve and the digastric muscle. I am scheduled to see Dr. Hepworth early October. There is also a possibility my Sarcoidosis has been reactivated from when I was younger, not in the lungs but in the heart. Dr. Costantino is sending me to see his cardiac surgeon for a full evaluation. Oy vey…
That’s it!!! It’s a great listen!!
I hope that it isn’t sarcoidosis again for you @Brandy, what a worry. Praying that you get some answers, let us know how you get on with all the new tests, sounds like you have way more than your share. Hugs as well
Thanks, me either.