My son had 4 styloidectomies with Dr. Newman at Penn. He is a gifted surgeon. Here is a link to my son’s story (available in e-book or pdf formats only at this time through Amazon, Barnes & Noble online, and many others:https://www.amazon.com/Connecting-Dots-Myoclonus-Glossopharyngeal-Neuralgia-ebook/dp/B073XSZ2G2/ref=sr_1_1?ie=UTF8&qid=1506282628&sr=8-1&keywords=connecting+the+dots+sherri+jonas
OR https://store.bookbaby.com/book/Connecting-the-Dots2
I don’t log on to this site often, but feel free to email me directly through my website: www.sherrijonas.com
And good luck to you. I know how life altering ES can be.