Many thanks again for your further advice. When possible, I will ask him about all the details you mention and a planning for the future intervention too. Tomorrow,I will do a further CT in 3D to update the situation of styloids.
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Iām glad youāre able to get a CT soon. It will help you to know what your styloids & stylohyoid ligaments currently look like. If you want to post your 3D CT images here, we can also give our non-professional opinions.
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Thank you, I will try.
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I did the 3D scan. I am not able to charge it here but it confirmed that the length of the left styloid is more than 4 cm and that of the right one, which is fragmented, is more than 5 cm. The left one apperas as ābigā whereas the right one is longer but āthinā. I have not yet seen the surgeon, also because I cannot move from here to Padova now because of COVID, but he required some time ago a polysomnography before the intervention which I should program as soon as possible. Do you know why it is needed?
The only thing I can guess is that he wants to make sure you donāt have sleep apnea before he does a major surgery for you. Probably best to ask him why it was necessary though.
Your styloids are very long & the fact that the left one is very thick is also good to know as thickness can play into symptoms along w/ length. Getting those bones out of your neck should make a huge difference in how youāre feeling. I hope the COVID restrictions lift soon so you can get on with your treatment & recovery!
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Thank you. Yes the left one is thick and the surgeon was also able to ātouchā it and to be convinced that it must be removed. For him the polysomnography is mandatory, as he wrote in his letter to me, and I think that the reason is precisely what you mention.
Now, I must wait for surgery and try to do some ostepathic treatment with caution in order to control the heaviest symptoms.
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Hello! iāve been recently diagnosed, but i struggle to find any doctors willing to helpā¦ Any news about this? Iām italian too and i know covid restrictions are getting heavierā¦
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Hi & welcome to the site! Hereās a link to the Doctors list that we have, maybe thereās someone near to you that you could contact:
Doctors Familiar With ES Countries Outside US Current List - Symptoms and Treatments / Doctor Information - Living with Eagle
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You can send a private email to Giulioedo by clicking on his name as it appears above his post. Another page will come up that will allow you to send him a private message. His last post here in 2018 so itās been awhile.
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I am sorry to have missed the last messages. I do not know where gma107 lives but I found a support in Padova with Dr Rosario Marchese Ragona. He proposed to me an intervention but then the COVID started and now who knowsā¦
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Thank you so much for your reply, Giulioedo! I hope gmal07 reads your post & is able to travel to see your doctor when things open up. Iām so sorry youāre still waiting to see Dr. Ragona. I hope things begin to open up soon so you can get on with your treatment.
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Thank you. I hope in the summer period.
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Thank you so much for the replies! Gulioedo, ill write you a message 
epsom salt baths will help with the stress and if you can find some magnesium oil spray on neck every day it helps with tight muscles, I am massage therapist and I use the magnesium oil on myself and all my clients it works. Hope this helps.
PS if you cant find magnesium oil, I think it is on Amazon or if you can magnesium chloride flakes you can make it yourself I can send my recipe if you like. They do sell magnesium chloride flakes on Amazon too.
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How hard for you to be a massage therapist & have ES. Thank you for the hot tip about the magnesium oil. I know this post is addressed to the others in this thread but it struck a cord w/ me as I have some mag oil & need to put it where I can remember to use it. I got it last year for a muscle issue then put it away after it was better & forgot about it. 
Yes, thanks for the tip. I had not heard of the magnesium oil either. I have chronic neck tightness even after ES surgery so Ill try it.
Thank you yes massage therapist are always looking down I am sure that it affects my eagles but usually not til the next morning will be glad when I see Dr Hepworth Oct 15. I also think I have some intercranial hypertensionā¦trying to get appointment with a Neuro ophthalmologist but itās like pulling teethā¦ hugs
Eagles is very stressful which also depletes magnesium and caffeine is a no. I am going to use castor oil on my scar as it helps with scar tissue which can cause pain too hugs
Iām sorry youāre having trouble getting an appointment w/ another specialist. SOOO FRUSTRATING!! I hope youāre able to get in to see someone before too long. You could also try a vascular surgeon/doctor to check the blood flow rate through your IJV. This needs to be done with your head in the position that makes your vascular symptoms worse. Dr. Hepworth uses someone specific for that & his name has been mentioned on our forum but I donāt recall who it is at the moment. You can try searching posts by clicking on the magnifying glass icon & typing Dr. Hepworth in the search window. Many posts will come up with good info from people whoāve seen him.
Thank you!