I think I have almost all Eagle Syndrome symptoms (right side)
However, there is one symptom I never heard of. In my right ear, I often feel I have a hot liquid coming out of my ear but nothing is actually leaking from my right ear.
I have occasionally felt that before. I have bilaterally elongated and calcified ligaments, and bilateral jugular compression caused by the ligaments and the C1 vertebra
Weāve just recently had another member who has that symptom & have had others in the past. We think when there is no liquid present that itās a nerve symptom, possibly caused by the trigeminal nerve.
When my nerves were healing after my second surgery, I had a section along my jawline that would intermittently feel hot, but not to the touch, just the sensation of being hot. Later it would feel cool/cold, but to the touch, it was the same temperature as the surrounding skin. It was very strange. Nerve sensations are variable & diverse.
The only time to be truly concerned about the sensation of fluid in your ear is if there truly is fluid there. That can be an indication of a perforated eardrum or of a CSF leak.
Last year in July, I felt with my tongue a āboneā on the right side of my tonsillar fossa. I consulted specialists, but they persistently claimed there was nothing there. I underwent countless tests, endoscopies, and nothing⦠In the meantime, I had constant purulent tonsillitis and tonsillitis, so in December 2024, I had a tonsillectomy. Everything was fine until January, when everything settled after the surgery, and I still felt that āboneā growing and descending further on the right side until Dr. Mirko IvkiÄ sent me for a CT scan of the paranasal sinuses due to suspicion of Eagleās syndrome. When I had the CT scan, they told me I had bilaterally elongated and calcified ligaments, but they didnāt know what to say or do beyond that. They suggested an intraoral surgery (recession of the styloid ligaments). From April until now, the situation has changed drastically. My left side has also swollen, and I have more and more symptoms (difficulty swallowing because they mechanically bother me, a feeling of tightness and a heavy neck, cough, I had a prolonged burning tongue, sore throat, my neck is quite swollen on the sides, ringing in my ears when I get up suddenly or lie with my neck twistedā¦). I was scheduled for surgery twice, but the accompanying symptoms and my unease didnāt allow me to relax with our doctors, so I kept seeking better explanations and a more thorough review of the findings until I came across this website and saw that several experts listed deal with this syndrome, so I requested a consultation with Dr. Aghayev from Turkey. He immediately reviewed the documentation and gave me the final diagnosis. Now I just have to decide when to have the procedure Hooray! After a year and a half, I found a doctor who knows how to read the scans and knows his job If I hadnāt sought an external doctorās opinion, I would still have the diagnosis ācalcified styloid ligaments as a possible cause of Eagle syndrome.ā
Of the tests, I had a CT scan of the paranasal sinuses and an MRI of the brain, cervical and thoracic spine because I suffer from lower back pain, and recently, based on the MRI, they determined that I have thoracic neuralgia. I am currently undergoing therapy. The problem here is getting tests done, whether through the public health system or privately, if the doctors themselves donāt recommend that you undergo certain tests. I canāt do anything here without a referral, and I canāt get a referral when they themselves donāt know to give one, nor would they give it if I asked because Iām just a patient who thinks she knows what needs to be done. If I can, I will also do a color Doppler of the head and neck blood vessels, but I doubt I will get a referral for that either.
Awesome news! I appreciate all your input, very similar to my symptoms.
May I ask you which country you are from? I am in Canada and I was told in Canada that my occipital emissary veins are too large and required coiling/embolization. I asked for second and third opinion in the USA, then I was told itās calcification of the Styloid Bone ligaments.
Iām from Croatia, and Iām sorry to hear that even where you are, itās not easy to get to the right doctor or a correct diagnosis. We have top-notch doctors here for common illnesses, but not for rare ones. It also makes sense because weāre a small country, but Iām always amazed that they havenāt at least heard of this syndrome in the literature.
If you have the opportunity, I suggest you do everything you can to be at peace with your decision on what to do. More tests, more consultations, and then figure out what to do to feel better and make your life easier