Anyone here diagnosed with CCI who had any sort of treatment done to the injured ligaments?
At the moment I’m thinking of PRP injections though my doctor is only able to do these on the back of the neck. Since my problematic ligament is the alar ligament, there are only a few specialists in the world who do the injections through throat (to be able to directly inject into alar or transverse ligaments).
I’m just wondering whether it makes sense to try the less invasive method first and if it can give any good results or if it’s not worth it.
Currently I’m also in conversation with Dr. Rolandas Janusas, the only European specialist trained by the Regenexx team who do the PICL procedure. Do any of you have an opinion on this doctor?
This doctor does injections through the mouth. I have had extensive PRP at Caring Medical, Florida to stabilize CCI which worsened after a styloidectomy and subsequently requires further PRP.
Thank you, I already know about Centeno, but it’s not available for me since its US.
From what I read, Rolandas Janusas has been the only EU specialist certified by the Centeno Clinic to perform this type of procedures.
Hi all, as a newbie to all this, could you advise how cci is diagnosed? Ie. if a full spine mri has been completed, would the results recognise/diagnose cci if it was evident? Or does an X-ray best show it?
@BraveKat DMX (digital motion X-ray) can identify cci. It record X-ray images as you move your neck through a range of motions and on playback you can see where there is instability.
Thank you both @Chrickychricky@Jules for letting me know. I have reseached dmx a few times in the past as I saw it mentioned on the Caring Medical Florida site. I found there is one chiropractor in a smaller town here who has one. I might look into this more post surgery if I find I am still having issues. Much appreciated
I am waiting for a consult with Dr. Fraiser Henderson in Maryland for a CCI diagnosis study. From what I can gather on my own an FONAR standing MRI in flexion and extension are needed along with a possible Cone Beam CT Scan. The issues is that a supine, or laying down MRI doesn’t show the movement of the bones of the neck that are involved in CCI, although in my case they were bad enough that there was enough irregualites of the measurements from the supine MRI that a referal was made to a CCI Specialist. CCI is determined by the measurement of the angles and distances of the bones in the c0-c2 upper neck in flexion and extension and an in office assesment of symptoms/history etc.
Thank you very much for the helpful info. I’ve since had surgery and now 3 months post-op. At first I was having a kind of rattling of the brain whenever I walked but that has since gone. My symptoms generally feel quite es related (common nerve pain symptoms) so I’m hoping for the time being, no cci investigations are required.
I hope you can get all the assistance you need. All the best
