X-rays don’t provide anything better than the CT unfortunately. But I think we know what’s likely causing your symptoms at this point - calcified stylohyoid ligament, hyoid greater horns, and/or thyroid superior horns
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Your thyroid looks odd to me, too, @mjzago, but I don’t know enough about thyroid anatomy to be able to say whether it’s outside of normal or not.
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I’m sorry that you’re having a bad day… I hope that it settles down quickly, take care 
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Today I was on the Ludwigshafen Klinikum and had a talk within the maxillofacial surgeon. She said my stiloydes are on a grey zone. About 3,0cm each side. They offered me a surgery to remove both process and also my both wisdom teeth of the right side. One surgery full of risks because of the proximity of my wisdom teeth with the nerve. I’m still waiting the the diagnosis from Dr. Martini.
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On Ludwigshafen I have the chance to do the surgery from inside the mouth. I can also do the stiloydes first and then the wisdom teeth.
That’s a tricky one, as intra-oral surgery is usually a tougher recovery, and also there’s more risk of infection and not as much of the styloid can be removed…
If you’re able to put up with the symptoms for now, it’s worth trying to get opinions on your hyoid bone as well; did you get the chance to ask about that?
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I didn’t manage to ask the doctor about the hyoid bone. She was very kind, but I was so nervous and in pain that I couldn’t really speak up when she mentioned that she could do the surgery. I want to wait for Dr. Martini’s and see which approach he deals.
My symptoms are still the same: neck pain, facial pain, pain around the eyes, and blurred vision in my left eye. I’ve had a few days without pain (right now no pain on the hyoid area), but most days the pain is present. Do you know what kind of medication is usually recommended? At the moment I’m on amitriptyline and gabapentin, but I’m not sure they’re helping. I think I need to ask the doctor again and maybe try a muscle relaxant, anti-inflammatory, or a painkiller.
The nerve pain medications can take a few weeks to build up enough for them to work, other ones which some members have tried are carbamazepine, pregabalin, lyrica, memantine for example. Muscle relaxants like baclofen or flexerin. Steroids can occasionally be prescribed in a short course, or otherwise as an injection with lidocaine into the tonsil region, you could ask Dr Martini or the doctor you saw today about that… here’s a link to some more info:
ES Information- Treatment: Pain Relief And Medications - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
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Hello everyone,
I wanted to share an update on my situation. So far, I haven’t been able to get in touch with any doctors here in Germany regarding my Eagle Syndrome diagnosis.
In the meantime, I managed to schedule a teleconsultation with Dr. Irlon Oliveira in Curitiba, Brazil. He is very experienced and has specialized in Eagle Syndrome. During our consultation, he recommended that I undergo a 3D CT Angiography of the cervical region and head.
Since I am currently in Germany, I plan to have this scan done here. Depending on how long it takes to get proper medical attention locally, I might consider having surgery with Dr. Oliveira in Brazil.
For anyone looking for a fast and expert diagnosis, I can highly recommend him.
Contact information:
Dr. Irlon Oliveira
Eco Medical Center
R. Goiás, 70 - Água Verde, Curitiba - PR, 80620-060
Hospital Nossa Senhora das Graças
R. Profa. Rosa Saporski, 229 - Mercês, Curitiba - PR, 80810-120
+55 41 98201531 (WhatsApp from the secretary)
I’m sorry that you’ve not been able to see anyone in Germany so far, but thank you for giving us the info about Dr Oliveira, I’ve added that to the doctors list! Did you ask about costs of surgery there?
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I didn’t ask about the cost of the surgery yet, but I’ll have a follow-up with him soon and can ask about it then.
The consultation fee was R$500, which is around €100 (more or less).
He also sent me the diagnosis and exam request in three languages — Portuguese, English, and German.
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It sounds like you’ve found a good resource in Dr. Oliveira, @mjzago. Did you discuss your hyoid bone w/ him as that’s potentially a big contributor to your symptoms?
I hope you don’t need to travel that far, but if you do, I hope he is very helpful for you.
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Yes, I mentioned my hyoid bone and the greater horn during the consultation. Dr. Oliveira said it’s important to do the 3D cervical angiography first to get a better overall assessment before drawing any conclusions.
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