for the past week, I’ve felt like a bee is buzzing on the right side of my tongue ( not the tip ) and on the top of my scalp. Does anyone else experience this?
The tongue sensation would be from your hypoglossal nerve, & the top of your scalp could be from your trigeminal nerve. Both of these are known to get irritated by ES. The image below shows the zones of the head/face that the trigeminal nerve innervate.
This is where the hypoglossal nerve exists:
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@Figuringitout have you made a 3D model of your CT? If no, can you make one using Radiantviewer and upload it on here? I want to see your styloids but also your hyoid bone
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I’ve not had this sensation on my tongue, but have had it on the top of my scalp, I also get a sort of pressure feeling there, & sort of itchy/ sore sensation. Nerve pain medications could possibly help?
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I’m on 300mg pregab + just added qulipta which does nothing but make me more tired and dizzy
it won’t work on my Mac nor will any other version I tried ( Osirix , beeDICOM , ect . )
@Figuringitout Frustrating, about the dicom software not working for you. As a last ditch effort you can upload your imaging to dicomlibrary.com which anonymizes the images & converts them to 3D that worked for my Mac but it took a while for all the images to upload.
This started for me about five years ago, you need to be assessed for elongated styloid process’s or styloids that are to wide/angled (winged) and/or compression. It will not get better on its own and I would suspect will continue to progress and just when you think it couldn’t get any worse it does! See your DOCTOR! Bring as much support as you can, research, know what imaging should be done, bring imaging you have already have, make sure you are very informed when you see them, because the reality is most of them won’t be and when they don’t know they deflect and stonewall. It sounds like you are at the front of this, so stay ahead of it, don’t let them stonewall or blow it off. The longer you go without diagnosis the harder it will be to get it addressed. Speaking form personal experience. I had the best of the best not see it for six years.
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