I have a long history since 6 years back with tons of symptoms. Last night I had a hard time sleeping due a feeling stabbing in the back of my throat radiating to my ear.
I’m honestly a bit to exhausted to write my history again due the amount of times I’ve tried to to do so.
I think if it’s eagels that it’s irritating a lot of nerves, it even pulsates up my cheek. Usually I have migraine, dizziness, brain fog and ear pain, neck pain. I can get a sudden feeling of collapsing when the pain is coming
Now the pain is also on my right side, same side as the cyst. My left doesn’t seem as affected
I haven’t been diagnosed yet, but I have feeling it might be eagels
New members can’t upload images until they’ve posted a bit, it’s a trust/ security thing, you should be able to now…
I’m sorry that you’ve been in pain and unable to sleep; it sounds like your glossopharyngeal nerve is being affected causing the stabbing pain in your throat and ear, and either the facial nerve or the trigeminal nerve with the pain in your cheek- they’re all commonly affected with Eagles… There are nerve pain medications which can help with this, like Gabapentin, Amitriptyline, Carbamazepine, which might be worth a try? They can take a little while to work though as they need to build up in your system. Migraines and dizziness can be caused by vascular ES, a CT scan with contrast can show if the blood vessels are being compressed in your neck.
@LitenDam - I am posting the images I annotated for you in our PM so others can also give an opinion if they see something else. As I suggested, if you can send a picture with your whole C1 vertebra in it, there may be more information I/we can give you.
MRIs make it hard to see things related to ES because it’s the muscles that are the focus, & they tend to cover up the styloids, & at times can hide the jugular veins, carotid arteries & hyoid bone which we need to see in order to better understand what is going on in your neck.
From what I can see (and not doctors here), it looks like the styloids aren’t that long, and there seems to be a reasonable gap between the styloid processes and the C1 processes- there’s often compression of the Internal Jugular Veins here if the styloids are very close to the C1. Although it looks like they are a bit closer on the newer images you’ve posted …
You have calcified sections of the stylo-hyoid ligaments further down as @Isaiah_40_31 has labelled, so these could be compressing nerves and possibly irritating the carotid artery… So I think it’s worth trying to look into ES, some people have sent their images to doctors to get a diagnosis if you’re interested in doing that? And a CT with contrast would be helpful to look at any compression of the blood vessels properly, but I guess that would be hard for you to get referred for?
It’s more like it would take a half year due the waiting time/queue is like half year currently in my country. Otherwise it’s easy to get a appointment but takes so so much time. Do you know anyone I could write to to have my pictures evalued?
Oh where do you see that my hyoid bones are calcified? Could you point it out for me maybe ?
You did a great job of adjusting your image of C1 so the whole of C1 is visible now, unfortunately, because of the picture quality, I can’t see any vascular tissues. Your styloids & the transverse processes of C1 are very clear though. As @Jules said, your styloids look to be a good distance from the TPs of C1, however, that doesn’t mean the TPs themselves aren’t causing compression of your IJVs. I just can’t see the IJVs in the pictures you posted.
I looked back at the first set of pictures, too, & don’t see your hyoid bone in any of them. It’s further down in the axial images at the level of C3 & will look like an upside down smile closer to the top of the image. Without being able to see your veins & arteries, it may be difficult to determine if your hyoid bone is contributing to your symptoms.
You can try Dr. Aghayev in Turkey. He does a quick evaluation w/o charge but will charge for an official consult with a much more detailed discussion.
•Dr. Kamran Aghayev - https://kamranaghayev.com
Link to set up a consult: Get Expert Neurosurgeon Consultation & Second Opinion Online
We can’t see your hyoid bone as @Isaiah_40_31 says, it’s the stylo-hyoid ligaments which have a calcified section in them- the stylo-hyoid ligaments run from the styloids to the hyoid bone. They can get calcified from the styloid down, from the hyoid up, or sometimes sections in the middle- yours look like it’s a middle section calcified…
