Hi & welcome to the site!
I’m sorry that you’re feeling so rough, and having to start a new job as well is very hard. Hope you can push through so that you can work from home soon!
@Rosie is right, because this was your first post you couldn’t upload any images, but I’ve altered that now so you should be able to, but make sure you remove any personal info off first to protect your privacy!
The fainting issues, dizziness & light headedness could well be being caused by the styloid process irritating or compressing your carotid artery. I just wonder with you mentioning the ear issues & feeling disconnected if you might have some internal jugular vein (IJV) compression as well. It’s unusual to have both carotid and venous compressions but it can happen. Given the symptoms you have, a CT scan with contrast is definitely a good idea, but I would push for it to be timed to show the arterial phase and the venous phase as well to check both if you can?
Many ENTs are unaware of ES, so that’s probably why you’re struggling to get a diagnosis. And if you have vascular ES as well, then it’s even trickier finding a doctor with experience. Here’s a link to the doctors list in case you haven’t seen it:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
It may be better if you’re able, to get a referral to an experienced vascular ES doctor, although it will mean travelling. Dr Hepworth in CO, Dr Costantino in NY, Dr Nakaji in AZ or possibly Dr Cognetti in PA are the doctors that we know most about, and they’ve done lots of successful surgeries.
Some of our members have multiple health conditions, so they may need different surgeries to cure all of these, but for the most part as long as people see an experienced doctor then the surgery is successful.
I hope you’re able to get a scan done!
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