I managed to get some good images from my most recent scan. The report also mentioned some things about the transverse sinus, and it has very limited blood flow. Is this likely a symptom of compression at the c1 / styloid, or something else?
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You have similar imaging to me (you can check my post for the images) relating to my transverse sinuses & IJVs.
We have one dominant transverse sinus that has to process the vast majority of the draining blood flow doing to the IJV and the other is hypoplastic like a thin non-existant line.
- First of all can you describe your current symptoms, has it been worsening in the past weeks/months are is it pretty much stable ?
- I am 11 days post-op for IJV decompression and doing very bad for now, so If i was you I’d wait a bit I’ll try to update the group on how I am doing regularly.
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My symptoms are almost completely on the right side (the smaller ijv, more compressed side). I have a lot of headaches with sharp pain directly at the point of compression. I also have pain/muscular tightness in the right side of my neck, back, and shoulder.
What doctor did you have surgery with and which side did you actually have decompressed? Interestingly, Dr Constantino said decompressing my OTHER side (which is also somewhat compressed) might give better results.
I think it is expected that symptoms get worse in your time frame due to swelling. I know it doesn’t help much right now but I bet will you will improve greatly soon.
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I don’t know about the transverse sinus issue, but you can see the IJV compressed between the styloid & C1 process …
@ryanab I’m sorry that you’re not doing so well, it’s not easy after surgery and can take quite a while for the swelling to go down enough for the IJVs to re-open, and for the head pressure to adjust. Were you able to get prescribed any steroids? I don’t know otherwise if any of the blood thinners which members have tried might help in the short term? Like Plavix, Brillinta, Eliquis, Xarelto, Diamox?
I hope that you improve soon 
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- Same for me, the side with the very thin Transverse Sinus & the smaller IJV is the most painful for me, not sure why! (& muscle tightness etc) no one was able to five me answers. The difference with me is that this side’s IJV is less compressed than the other side with the dominant IJV & transverse sinus.
- I had the surgery with Doctor Kamran in turkey, I had both sides decompressed in 1 surgery. I recommend 1 side at a time! & for doctor’s C. opinion on decompressing the lesser compressed (and more dominant) IJV first I can’t comment on that as your left side doesn’t seem super compressed. I feel like in your case a Catheter Venogram exam of the head and neck would give us the answers!
Thanks for the support Jules! I still am in turkey and couldn’t get steroids prescribed by doctor K. he isn’t a fan of them 
as for blood thinners you indeed mentionned them in the past I actually bought a bottle of Lumbrokinase (made with enzymes from… worms) which isn’t a prescription medicine, it’s a “natural” blood thinner that is if I am not wrong the most powerful blood thinner available as a “food supplement”. So I might try that. Doctor K. isn’t a fan of blood thinners at all but at the same time he’s not completely aware of the level, of some of patients with more severe case may suffer.
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@dwg176 The best way to assess for IJV compression is via the axial view. If you want, I can take a look through the entirety of your imaging and assess for IJV compression as well as ICA compression. Let me know your thoughts. Members usually put their CT files into a folder on google drive and then private message me a link to the imaging. That way I can download the full CT and go through it. You would no longer be anonymous to me but I would be keeping all your personal information private.
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I am the same guy that you reviewed previously 
The total lack of flow in the sinus is new info to me but perhaps expected.
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Whoops! I review so many now I get people mixed up lol. Glad I took a look!
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@ryanab - I took Nattokinase in the past & it seemed to work well so I hope the Lumbrokinase helps you significantly, @ryanab. I’m continuing to pray for you. I felt pretty lousy for the first two weeks after surgery & I only had one side done at a time. Since you had both done at once, it may be closer to a month before you begin to really notice positive changes, but it could also be much sooner since you’re much younger than I was when I had my surgeries.
@vcp02 just mentioned (in another discussion) that a muscle relaxer (Nuycenta) helped her a lot with reducing pain after her surgery. That’s something else you could consider since you’ve mentioned your SCM & scalenes are very tight. There are other muscle relaxers on the market as well.
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