Its been a year since sugery im doing great with my styloid being removed .The constant headache gone. .my ringing in ear is gone along with face pain .Still have a bit of first bite. Unfortunately they also found a pituitary tumor do im dealing with that. I love this group got me thur my time of need. Thank you
Wonderful! Thank you for the update, it is so helpful for those of us who are on this side of preparing for surgery. So sorry you have another issue to deal with and hope that that process goes smoothly. All the best ))).
Thank you Leah Best wishes. We do recover. Maybe not 100 percent. But see much much inprovement
Thank you for coming back with an update, can’t believe it’s a year already! Really pleased that you’ve seen improvements, it’s encouraging for others! But sending you a hug & hoping that whatever treatment you need for the pituitary tumour is successful
Ty jules.yes a year . Hopefully my story will help other’s in recovery or awaiting surgery.I am getting the best care for my tumor. Going to the neuro medical clinic in Baton rouge. Thank you for your concern
I also was surprised it’s been a year since your surgery @Michael123. It totally made my day to hear how well you’re doing.
I’m sorry about the pituitary tumor & am really glad it read that you’re in excellent medical hands. Please let us know how you’re doing throughout whatever procedures are needed to eliminate the tumor & as you recover. I’ll pray for complete healing from that.
Ty Isaiah My recovery in my year was slow but my symptoms disappeared slowly It does take time for your nerves to get right like yall said and I am grateful. .Oh yes I have an very interesting tumor. Thank you for your concern .Will keep you guys updated
Ah, Gives us awaiting surgery hope! Thanks for your update. Praying for recovery from this tumour. What is so interesting about it, if I may ask. ?
So wonderful to hear from you ! I can’t believe it’s been a year! But I do remember your surgery being a little bit before mine now that I take pause and think about it! It will be a year for me end of October. Crazy! Hard to believe. I am glad to hear you have gotten relief from the surgery. That is wonderful news
I am sorry to hear about your tumor definitely please be sure to keep us posted. Definitely continuing to keep you in my thoughts and prayers as I have been all along my friend.
So glad to hear a success story. It gives me hope. Hoping all goes ok with the rumor.Thank you for sharing and wishing continued healing for you. Enjoy your new found loving life again!
Great to hear you are much better now.
Ty Lizbeth Hope your symptoms not too bad and you get the relief you need. My tumor is interesting because it a double on sits on top of each other. Im going to need a craniotomy.
Ty so much. Wishing you the best
Ty. NurseAng1. We are here to help each other thur these times .Hoping for the best for you .
Hey D. Hope you doing better after surgery . We are strong and do recover the best way we can .to make our lives just a bit more manageable. Will update you guys once i get my next step. Im content .Just wanna get it over with knowing what they have to do lol. I have a big appt on the 25 and 26 of Sept . Ty and Take care friend
How wonderful! It’s a process but, you made the right decision. I know it took me awhile to try to feel some kind of normalcy after being in pain for so long…Just keep moving forward everyday. That’s all we can do. I am so happy that you are feeling so much better.
Continue to stay with our group even when you get totally well. This group needs us to encourage others with ES.
@Hadassa - we really appreciate that you pop in here & there to encourage & support our members especially since it’s been so long ago that you had your surgery. It’s also great to hear how well you’re still doing!
Thank You Isaiah_40_31…I don’t even know how I even found this group, to tell you the truth? I suffered so much and for so long and this group helped me get the strength and hope that I would get better. My job is to encourage whomever is still going through this difficult syndrome.
I read their stories and my heart goes out to them because I was in the same situation they are going through, right now. My job is to encourage them to pursue their healings and have some hope. I gave up so many times during my painful journey but, I didn’t let up even though I was ready to jump off the Earth at times.
I still see Dr. Krempl at least once a year but, he did tell me that this was never coming back and that was confirmation to me that I was on the right track. I do thank you and Jules for helping so many of the people that find this group.
Right now I am preparing for Sept.27th because I am having a right hip replacement and I have no idea how long I will be down? Everyone that I have spoken to about hip replacements say it’s the best thing they ever did. No more pain! I’m game…My hip has been keeping me awake at night and I’m tired of it. This is a piece of cake compared to ES.
Will pray that your surgery goes well! I hope that you’re healing issues don’t cause problems again
Thank You Isaiah_40_31,
I am certainly going to speak to my surgeon about the Kitamine and whether he will be doing my surgery anterior or posterior. This is awesome
that you are telling me about what and how they do it. I too feel that my Orthopedic physician is experienced and very conservative when
doing surgeries. He IS a believer and he is an older gentleman. Back in March of 2020, I had a severe ear infection and I found another mature
physician. I literally thought I was going to die from the pain! This was not Swimmer’s Ear!
I went straight from the ER into surgery and because of Covid, Dr. McGee didn’t want to admit me into the hospital so, he sent me home and I
just tried to recover at home. I ended up with a worse infection (yeast formed inside my ear) and once again I went to the ER and straight to the
OR but, this time, I was admitted into the hospital and ended up having to stay in for 4 days…He also gave me a bad haircut too! LOL, he had to
totally reconstruct the inside of my right ear and my hair had been shaved on the right side! That was 2 major surgeries in 7 days. I tease Dr. McGee
all the time about the bad haircut…If I wanted a bad haircut, I could have gone to Supercuts!
In speaking with this Orthopedic doctor, I mentioned Dr. McGee to him and he said he knew him and that they were good friends…You see, Dr. McGee
was one of the physicians who traveled with the Rev. Billy Graham and Ruth Graham on mission trips. Dr. Low, my Orthopedic Surgeon also traveled to
the Congo with Dr. McGee and Billy Graham. I did not know this. So, I feel that my steps have been ordered of Yah in this situation too.
Come Monday, I will call Dr. Low’s office and I will find out about the surgery…again, thank you for bringing these questions that I need