Hi. In the Ehlers-Danlos and other chronic illness worlds I see folks mention Patient Advocates, who help you with insurance and the financials and more. Has anyone successfully used one of these folks for the styloidectomy/jugular compression surgeries? I’m so overwhelmed with being sick and feeling rotten, and having trouble sorting out what to do with myself. Thanks, t.
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I’m UK, so don’t know much about this, @Isaiah_40_31 said this:
And there have been a few discussions about appealing insurance companies decisions, I don’t know if they’re helpful:
I’m asking for my eagle syndrome familys help - General - Living with Eagle
[Update …final appeal - General - Living with Eagle]
Dr Osborne- Blue Cross Blue Shield Out of Network Waiver-2025 - Welcome / New User Help - Living with Eagle(Update ....final appeal)
So it sounds as if you could look into whether your insurance company has one?
Also @Snapple2020 has posted info about medicare in this discussion, I don’t know if it’s at all relevant to your situation:
New here, hanging on to life by a thread, don’t know where to go next - General - Living with Eagle
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I used a company called Solace Health (first one that pops up in google search) that set me up with a local nurse practitioner to help me get appts. with various providers. Sometimes she struggled with the same waiting issues and non-responses that anyone would, but they took insurance (I have Medicare) and worked at no cost to me. This was not specifically for ES, but they did help me with various appts. Hope this helps!
Mark
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