just letting the forum know about my (lack of) progress:
I joined the forum a couple of years ago, after several years of pain and a diagnosis in about 2016 or so - it’s been so long I barely remember.
I have bilateral Eagles and live in Auckland, New Zealand: a land of few people, many sheep, great beauty, hobbits and orcs.
While I have been under the ‘care’ of an ENT doctor here in Auckland, there are no surgeons in the country that have done any Eagles surgery. I have been sent backwards and forwards to various clinics around Auckland, had many scans and seen many doctors. Only two of them have ever heard of Eagles before I saw them, and only one had actually seen another case. They all say ‘not me’ and pass me back to my ENT doctor.
So the last time that happened, my ENT guy said that they would not pursue a surgical solution: they would only offer me a drug solution: I currently take Pregabalin which usually reduces the pain level but does not stop it, and sometimes I feel the full brunt of it regardless of the pain relief I take.
And unfortunately that is the good news
I have put my search for a solution to the Eagles on hold because I have been recently diagnosed with lung cancer - and in the same week as my wife was diagnosed with breast cancer. The only lucky part of this nightmare is that both of our cancers have been caught early, and our prognoses are good.
After we have got through the treatments and are cancer-free I will resume my search for a permanent fix for the Eagles. I would like to try the surgeons in Melbourne, Australia but the Covid situation there precludes that for the foreseeable future.
If I make any progress I will return and let the forum know: until then to all fellow sufferers - Kia Kaha everyone.
Stay strong and stay safe