Please help me update the doctors who have done successful surgeries

General
1

I have been going through the discussions from the last 3-4 months

I have new Doctors to update,

Dr. Osborn, Dr Simmons, Dr.Lakhani, Dr Salmon (austrailia), Dr Mahthei, Dr Guardiani and Dr Taylor,

Dr. Downie and Dr Jackson, Dr. Gurathi,

Some of these doctors may or may not have done successful surgeries because we have not heard from all the members since surgery.

Also, I may have missed some. I think I have missed a doctor from the UK, not sure but thought I had seen a new posting from UK.

So please members list your doctors if you have had a successful surgery since Sept 18th and if you had a bad experience, for any of the above let us know.

I will probably list all these names in the future, but a couple of them I am not sure of.

Please respond to this discussion, I will be checking.

2

Timothy Osborn, DDS, MD

Assistant Professor

Director of Internship Program

Department of Oral & Maxillofacial Surgery

Boston University @ Boston Medical Center

617 -638 -4350

3

Yes, I have him down for my next update.

4

Dr. Elizabeth Guardiani and Dr. Rodney Taylor (who perform the surgery together) are fabulous. I highly recommend them. They work out of University of Maryland medical center in Baltimore. They did 2 surgeries for me. I had Eagles bilateral and now have my life back. These two are my heroes.

5

Thank you Jonsty

6

Dr. Charles Moore @ Emory University Hospital in Atlanta Georgia" He’s a Base Skull Surgeon. In the Ent dept" He did mine and my mother’s intraoral surgery in 2006" He’s still there. I was his fifth patient . He did a fabulous job! Was it a easy surgery no! But he’s a wonderful doctor and is very knowledgeable and has a gentle bedside manner! He became so fascinated that I came up with my own hypothesis that this condition is genetic! My sister has it also. We all have autoimmune problems too. Not only do I calcify in the styloid region but also a calcification was found in my breast and hip. My Rheumatologist said its due to my autoimmune disease for which I have Anklelosing Spondylitis and my sister and mom have psoriatic arthritis. Everyone needs to get the whole tonsil scarring thing out of there head. That is not what causes this disorder! Eagles Syndrome is only part of the problem that follows another disease! He is writing a book on this and I was one of his subject studies. I had 38 mm dissected. He said it was the longest ever recorded. I dont know if thats still true by now. But I was just glad to get it out. I still have one one on the right side and its really giving me problems. So surgery #2 maybe on its way" Best of Luck my eagles friends♥

7

Dr. Charles Moore @ Emory University Hospital in Atlanta Georgia

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Wow, he got his MD at Harvard.

8

wow, I will add him. I bet he is right. Most of us seem to have other issues. I started having some problems with bleeding ulcers 11 years ago, and seemed like things started to happen after that. I have never been diagnosed with auto-immune diseases but then got Thyroid Cancer and already had Eagles undiagnosed. Lots of bone and back problems since and nerve inflammation. I guess I should be gettiing it all checked out, but they will want to put me on lots of drugs and I am trying to avoid that as long as possible. All my regular blood work is good, but I figure something is going on.

I will put Dr. Moore on the list ASAP

9

Styloid-stokes I want to friend you, need to ask about your Anklelosing Spondylitis.

10

Dr. L. Arick Forrest

Otolaryngology James VSD Clinic At Stoneridge

Ohio State University Hospital Medical Center

4019 W Dublin Granville Rd

Dublin, OH 43017

614-â– â– â– â– â– â– â– â– 

As of 1-31-14 he has 55 Eagles surgeries.

11


Has anyone ever heard of Dr. Peter-D-Costantino out of Lenox Hospital, N.Y.?

12

Katie, why do you ask about the NY doctor? I work in manhattan and have no idea how to find somebody who is good at understanding ES, everyone has said “no, you don’t have it,” but I haven’t had the right type of scan and my symptoms are spot on. Would LOVE to know your thoughts on this dr (or any other in NY or nearby)

13

I am in the Cincinnati area and my oral surgeon diagnosed me with eagles using an xray but I have not been to a doctor yet. I have an appointment at University of Cincinnati headache and facial pain but I am not sure about going. I have been traumatized by the 2 neurosurgeons I saw around ten years ago. Also the stories on this site make me very cautious. I kept telling them my symptoms and they would say that could not happen.

So I am thinking about doing more studying before I go down that dark road again

14

Hello, I am new to this forum but was diagnosed with atypical facial pain and eagle syndrome and TMJ. I had surgery which lessened my facial pain with Dr. Arnold at the university of Miami Sylvester his number is 305 243 4000. He is a cancer specialist but has done many of these surgeries.

I have found that even after my surgery I still have pain and I am currently working with a myokinesthetic advanced massage for my tight and contracted muscles in my neck, back and pecks they are located in Jupiter Florida MyoMassage 561 262 5116. I believe we need to look at our postural imbalances to help our bodies heal even after surgery.

15

Dr. Richard Newman San Antonio Texas. He Trimmed back my Styloids since they were cutting circulation and messing with my facial nerves. we cut little over an inch on each side. its been a huge relief so far.

16

Ann, please contact me, I am going to send you a friend request. I have some information for you regarding your surgery and your "NECK" tightness.

17

Mr Rogan Corbrige Royal Berkshire Hospital UK.

18

Dr. Matthew Conoyer in St. Charles, MO. St. Charles is part of the St. Louis Metropolitan area. Here is a link to Dr. Conoyer's biography page... http://www.mid-westent.com/dr-j-matthew-conoyer.html

From what I have read, I had a rather unique presentation. In 2006, I had my first cervical fusion which attempted to fuse C4 and C5. When that failed to fuse, I had revision surgery in 2012 for C4, C5, and C6.

About 2 1/2 months after the surgery, I developed excruciating intermittent pain consistent with glossopharyngeal neuralgia.

I read that some patients developed GPN after a tonsillectomy. When I mentioned the unusual pain issues (and I already knew about GPN) to my dentist, he suggested I get assessed for Eagles Syndrome. My ENT surgeon and I have have been through a lot as I developed one unusual condition after another.

Dr. Conoyer ordered a CT scan of my throat ... but he was not expecting to find Eagle's Syndrome. The CT scan told a different story...I definitely had elongated and calcified styloid processes. I have had quite a few CT scans of my throat and neck area before the GPN pain began. I reviewed those radiology reports and the phrase "elongated styloid process" appeared several times.

I had also learned that the calcified process can be long enough to irritate the glossopharyngeal nerve...thus causing secondary GPN. The surgical treatment for GPN is usually microvascular decompression (ie brain surgery). My neurosurgeon (a doctor I highly respect) did not feel comfortable doing the GPN surgery and I was going to need to go out of Missouri to find a neurosurgeon who could help. That is..until the CT scan surprised my ENT by revealing a very severe case of Eagle's Syndrome.

The surgical treatment usually requires a tonsillectomy so the surgeon can remove or shorten my elongated styloid processes. When Dr. Conoyer operated, he told me that my styloids (both sides) were not only very long but they were very sharp. I believe that the Eagle's Syndrome caused my secondary GPN. After I healed from the difficult and painful surgery, I noticed I hadn't had a GPN attack. It has now been about 16 months since the Eagle's Syndrome surgery and I only had one questionable attack since... I use that term because the attack felt just like the GPN attack but it was nowhere near as debilitating as it was before the surgery. Before the surgery, I was experiencing an attack nearly everyday.

I can't help but feel like Dr. Conoyer is my guardian angel right now. If anyone needs a great ENT surgeon in the St. Louis area...he is the one to call. Here is his contact information:

Midwest ENT Centre, St Peters MO, 63376
PH: 636-â– â– â– â– â– â– â– â– ,

Good luck....

19

Thanks st. Charles , I will be posting a new updated spreadsheet hopefully next month.

20

Thanks for this info. I just posted seeking a doctor here in Atlanta. Looking him up now!

Dee" said:

Dr. Charles Moore @ Emory University Hospital in Atlanta Georgia" He's a Base Skull Surgeon. In the Ent dept" He did mine and my mother's intraoral surgery in 2006" He's still there. I was his fifth patient . He did a fabulous job! Was it a easy surgery no! But he's a wonderful doctor and is very knowledgeable and has a gentle bedside manner! He became so fascinated that I came up with my own hypothesis that this condition is genetic! My sister has it also. We all have autoimmune problems too. Not only do I calcify in the styloid region but also a calcification was found in my breast and hip. My Rheumatologist said its due to my autoimmune disease for which I have Anklelosing Spondylitis and my sister and mom have psoriatic arthritis. Everyone needs to get the whole tonsil scarring thing out of there head. That is not what causes this disorder! Eagles Syndrome is only part of the problem that follows another disease! He is writing a book on this and I was one of his subject studies. I had 38 mm dissected. He said it was the longest ever recorded. I dont know if thats still true by now. But I was just glad to get it out. I still have one one on the right side and its really giving me problems. So surgery #2 maybe on its way" Best of Luck my eagles friends♥