A member did a survey quite a few years ago asking about common symptoms- it was quite a small number who replied, but here’s a quick list of the symptoms reported which might help you:
Neck pain 90% - 18
Ear pain 95% - 19
Jaw pain 75% - 15
Eye pain 60% - 12
Throat pain 85% - 17
Swallowing difficulty/ pain 65% - 12
Choking sensation 40% - 8
Foreign body sensation in throat 85% - 17
Visual disturbances 50% - 10
Tinnitus 60% - 12
Pulsatile tinnitus 20% - 4
Hearing problems/ underwater sensation 45% - 9
Ears popping 50% - 10
Arm numbness 50% - 10
Shoulder pain 65% - 13
Limited neck movement 70% - 14
Limited movement in shoulder(s) 30% - 6
Heart palpitations 40% - 8
Neck pressure/ bulging sensation 35% - 7
Hypotension 20% - 4
Orthostatic Hypotension 20% - 4
Hypertension 15% - 3
Cranial Hypertension 20% - 4
Pressure in the back of your head 50% - 10
Twitching 35% - 7
Pain with yawning 60% - 12
Excessive yawning 35% - 7
Headache 75% - 15
Answer Choice: Responses:
Change in voice 55% - 11
Hypersalivation 35% - 7
Paplpable mass in neck 35 % - 7
Suspicion of Thoracic Outlet Syndrome 15% - 3
Episodes of feeling very unwell 60% - 12
Worsening of symptoms in cold weather 40% - 8
GI problems 30% - 6
Exercise intolerance 45% - 9
Numbness/ tingling in head or face 45% - 9
Muscle spasms in neck 40% - 8
Speech difficulty 10% - 2
Tongue deviation to the side 15 % - 3
TIA’s 0%
Suspected TIA’s 15% - 3
Circulation problems 30% - 6
Difficulty sleeping 65% - 13
Positional symptoms while sleeping 65% - 13
Symptoms worsening at elevation 20% - 4
Symptoms worsening when raising arms above head
The original discussion/ results can’t be accessed any more, but luckily I’d saved it! Here’s a link to the whole report in the Newbies Guide Section:
Survey Results - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
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