I spoke with Dr. Samji over the phone yesterday (Saturday) for about an hour.
First, let me tell you that from working in healthcare, this is (by far) NOT the norm for physicians and I think it speaks volumes about his sincere care, compassion and willingness to get his patients better. Unheard of for an MD to that.........still amazed :o)
He said he has viewed my 3D CT Scan with contrast and measured my styhloids at a little over 50 mm on each side........with the left one having width and curvature issues.
Not knowing as much as you guys do, I asked him point blank how does that rank to the patient population out there.
He said while this is not the longest that he has seen, I would be in the upper 1/8 of 1% of patients out there. "Impressive" was the word.........ha.
He could not believe that I do not have pain from what he was seeing on the scan! However, he did not discount my neuro issues......fatigue, tinnuitis, eustashian tube dysfunction, light headed, yada yada yada. Essentially, he said that many patients have these issues, but fail to tell him because they are so bothered by the pain that they can only focus on one issue at a time! The ringing ears, fullness in the ears, fatigue, everything else that I mentioned could certainly be an ailment of these things according to Dr. Samji.
In his mind, there is an obvious link to why I have felt like shit for 6 + years, 24/7 and these wooly mammoth tusks that he saw.
He said that he would absolutely consider me for surgery.......the external approach.
I will, first, have to have a clinic visit in San Jose and then move on from there.
This would all be so much easier to proceed with if I had the "classic" symptoms ....... I would have no doubts whatsoever.
I want to feel better so BAD that I am still tempted to move ahead, as I have exhausted every other form of treatment to date.
That is where I stand.......kind of dazed, but also somewhat relieved that he saw "something" that may be causing all of my issues that I have been dealing with.
Thoughts, Ideas, Suggestions???