Terrible pain days

I’m so sorry that you’re feeling that bad, I don’t know how you function at an 8 pain-wise, never mind being at a 9.5, so sending you a very gentle hug :hugs:
I think to be honest all the usual pain relief options we suggest wouldn’t help if you’re in that much pain; the nerve pain meds can take a couple of weeks to work, lidocaine patches probably wouldn’t be enough, nor magnesium, heat or ice… I think hydrocodone is pretty much the strongest medication that members have used for pain relief… If you have vascular ES symptoms, & the headaches are part of that, if it’s IJV compression then blood thinners can help with that, but if it’s carotid artery compression then that wouldn’t be advised I wouldn’t think…The only other suggestion (I’m Uk so I don’t know if it’s legal ) is medical marijuana, there’s some info in these posts:
Medical Marijuana - general information - Symptoms and Treatments / Complimentary Therapies - Living with Eagle
Medical marijuana for IIH, case report - Symptoms and Treatments / Complimentary Therapies - Living with Eagle
I’m sorry that I can’t offer you any help with this, I hope that the pain management team can offer you something, praying that this eases :hugs: :folded_hands:

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