Thank you and bye for now

General
1

Hi Isaac and Jules

I wanted to thank you both for running this site and for all the knowledge and kindness you have shown me.

I hope the information I have posted on my journey will help other UK members navigate their journey better.

I am now in deep trouble so may not make it back on site soon.

I wanted to thank you both and say good bye for now.

Main new lessons- dont ignore eye symptoms, they are window to brain (Henry Marsh). What is wrong may not be in eye itself but inside brain -eg optic nerve and 6#th cranial nerve. Eye dysfunction may be a signpost to what is wrong in brain.

If have swallow issues then get proper swallow test to show what is happening as you swallow. Physio may help you improve swallow.

UCLH Imaging capabilities are impressive. They include a new leading edge PET scan that found things all other imaging missed. It is very fast and patient friendly. A glimpse in to the future of Imaging.

Remember- they may all be missing something else that is wrong and creating high pressure in brain.

Anyway bye for now and thanks again.

Best always. Debbie

2 Likes
2

Debbie,

I am so sorry to learn that you have bigger & more insidious things brewing especially in your brain. I will pray for you to make it over this next hurdle and find your self recovering & stronger than ever on the other side.

Your advice to & support of our members over the years you’ve been here has been tremendously valuable. Thank you so much for the guidance & care you’ve given while here. We will miss you very much.

I wish you all the family/friend support possible & the best of the best medical care. I am sending you a healing hug :hugs: :gift_heart:

3 Likes
3

So sorry that your surgeries weren’t the answers to your health problems, and that something else is going on…your advice especially to UK members has been invaluable, so thank you very much for your input, you’ve been a real blessing.
As @Isaiah_40_31 says, we’ll miss you & I’ll join her in praying for you :pray: :hugs:

2 Likes
4

For the record my surgeries were good snd did help me. Not perfect but much better.

2024 a good year fir first 8 months,

But eye & brain teams missed vital clues and so things have now “blown up” and health collapsed.

Not sure if can make it back yet, but will try.

Tbh am worn out with being very sick again.

Will see what unfolds. D :).

2 Likes
5

Debbie, your strength and support for this community have been truly remarkable. I’m so sorry to hear about your health challenges and will keep you in my thoughts. Your journey has been inspiring, and I hope you’ll find the strength to recover. Wishing you peace and healing.

1 Like