I am truly surprised at how well my recovery has been. My POTS is definitely better. I don’t have any pain related to surgery except some jaw tightness and jaw muscle spasms. I have been back to my baseline steroid dose for 4 days. My mast cell disorder flared up this week when I tried to lower those meds to baseline so I went back to a higher dose of mcas meds. I felt pretty rough for 3 days until I realized it was the mast cells acting up. I suppose it might take awhile to calm down since mast cells play a major part in healing injuries.
Arnica cream has been super helpful for the bruising, swelling, and jaw muscle tightness.
I have even been on the stationary bike 3 times in the past week which is completely unheard of for me. I still have a fun variety of autoimmune stuff and possibly CSF spinal leak but I’m thrilled to get some quality of life back from the styloidectomy.
I put a photo of my incision in the comments - a huge improvement in a few weeks.
Your incision looks GREAT! It’s so small!! I’m excited to hear about your stationary bike adventures! That’s awesome!! Starting to feel somewhat normal is such a gift, isn’t it!
I have a friend w/ pretty advanced mast cell disease. I know when it flares the going gets tough. I’m glad you’re able to somewhat control your symptoms w/ prednisone. It is sad that those cells that help w/ our immune response & healing can turn against us in such a nasty way. I hope you continue to feel better & that there is no CSF leak.
That’s looking good! So pleased that you’ve noticed improvements, that’s great to hear! Hope you keep healing well, just be careful not to overdo things with the novelty of feeling a bit better!!
