I’m so sorry that you’re feeling so rubbish and for so long 
My symptoms weren’t as extreme as yours but I did feel pretty grim in the lead up to surgery & it couldn’t come soon enough for me, so I can sympathise with you…
It sounds like it’s been a battle for you to be taken seriously by doctors, and that must be exhausting- I agree that the scoliosis in your neck must be making things worse, have you had scans and investigations into CCI too?
Wearing a soft collar is something we would usually suggest to help not moving suddenly, but you’ve obviously tried that. I can’t really suggest anything else, other than what you’re already doing, limiting movements as much as possible, and understandably that’s hard for you with ADHD as well… How helpful is your PT, do they know much about ES? It might be an idea if you give them this article to read about ES & PT, co-authoured by one of our members, as you don’t want to make things worse:
I think others have had surgery fairly quickly with Dr Costantino if he agrees that it’ll help you. As you’re needing your husband to perhaps drive you to appointments, would a cancellation appointment not be possible? Some members have got in sooner by being put on a cancellation list.
Sending you a hug, and praying that you’ll be okay while you wait 
