As most otherels know, Dr. Hepworth and his have been very helpful and supportive.
I was extremely sick after the surger and Dr. Hepworth wanted me to stay a night in the hospital. It was a great idea, as I would have had to come back to an ER. I have extreme reactions to the anesthesia, so they gad to treat me according.
I am not in much pain, Thank JESUS, so they will be sending menout today.
Dr. Hepworth said my styloid look nasty. He took out lymph nodes and they testing them now. He shaved off my C1 to give me as much space for the JV as possible.
I am praying for all of you, and that you get your treatment as soon as possble.
I’ve been praying for you so it’s a relief to hear that you’re through surgery, and I’m glad that you were kept in for the extra night. Are you staying in the area for a bit or coming home soon?
How king of you to think of others when you’ve had such a difficult journey yourself!
Wishing you a good recovery and a successful surgery, take care of yourself
I was wondering how your surgery went. Your case seemed like one that needed to be fast tracked for surgery.
You made it through and just have to heal now.
Once you recover I hope you come back and tell us about his surgery report. It sounds complicated.
Did they use the words “malignant hyperthermia” as it pertains to your reaction to the anesthesia? That potential issue is why they used the TIVA protocol on me in my last surgery.
Wishing you best of luck for the recovery process.
@harrisonboy I’m so happy that you got your surgery! The recovery process is just that…a process. I feel like there are 2 recovery tracks happening simultaneously. The first is recovering from the insult of the surgical procedure itself. For my first surgery that took about 3 weeks. I’m about 10 days in from surgery number 2 and still dealing with swelling and nerve jangling and their side effects. The second track is the healing of the brain structures that have been impacted by hyperprofusion of oxygenated and nutrient filled blood. I have great faith in the neuroplastic capabilities of our brains but it does take time. Wishing you the best. Keep us posted.
Each step you take is a step toward healing, @harrisonboy. It may not feel like it initially, but each surgery/therapy will add up over time, & I hope that one day you’ll feel so much better!!
They want me back in three months to see if they need to do the other side. I dont think I will. I am in no shape for further surgeries. Too many other issues, so I guess if the first didnt work, it will just be what it is.
I know you feel discouraged but it is way too soon to know. Your body has a lot of healing to do.
I had a radical hysterectomy that is done all over the world by many doctors. My recovery was very up and down as the body repaired itself.
You had a surgery very few surgeons will do. Give your body time to heal. Also, it is possible that other conditions not related to Eagle syndrome got shaken up by the ordeal. Your body has to find a new equilibrium.
There are a couple of things I have used for similar. You have to do a lot of research to know what you are getting into.
I had a mast cell issue when my body went haywire for months because of MRI contrast.
Activated charcoal helped. Don’t take within a few hours of medicine because it will absorb it. It is used in hospitals to absorb toxins so it will absorb medicine. You have to be careful if you are on a lot of meds.
People have tried Low Dose Naltrexone for long Covid which will taking experimenting to find right dose.
Beef Kidney for histamine issues. However, since I can’t get it at my store I use a Grass Fed Beef from New Zealand capsule.
These are things you can try that might or might not help as you recover.
Just because you’re not feeling post surgical pain doesn’t mean your body doesn’t have inflammation or trauma. I know it’s hard to have hope when you’ve been let down so many times and you’re so beat down from chronic pain. Maybe you have inflammation pressing against your vagus nerve and it’s causing a stress reaction and other symptoms.
Your body has lived at an elevated baseline of pain and stress for so long it’s going to be hard for it to let go. That takes time. When it does, with luck, some of your symptoms will fade. I will hold hope for you.
@harrisonboy - You’re 3 days out from surgery. Days 3-6 are when the post op inflammation is the absolute worst. Staying the course with your pain meds & keeping an ice pack on your incision w/ a cloth between your skin & ice pack, as much as possible should be helpful. Sleeping & resting with your head elevated to 30° will also help a lot to reduce inflammation & pain. It will take 4-6 mos for you to know the outcome from this surgery & up to a year for full nerve recovery. I know these aren’t comforting words when you feel so bad but this is a surgery whose recovery takes much patience & time.
I agree with all that both @JugularEagle & @Val7426 said. A positive mindset will go far toward your recovery. Give your body rest & time to recover. I expect you will feel at least some better by a month post op & even more so beyond that.
Totally agree with what everyone has said about patience with the recovery. Everything gets worse before it gets better as the surgical swelling becomes the point of stenosis itself. I have had crazy head pressure, fatigue and tinnitus since my right sided surgery 12 days ago. Yesterday was a little better and even though it’s only 5:22 am I can tell that today is already a little better. So give yourself time. Also, when we let our anxieties and the negativity bias of our brains to run away with our minds we can get caught in a fear/pain loop. Constant sympathetic nervous system activation is inflammatory in and of itself. There is a saying that comes from wisdom traditions that the mind takes the shape of what it rests upon. I hope you can find some peace today.
I agree with all the others, with any surgery you’ll have a rough few days, & what you’ve had done is a tough surgery, on top of your 5 years of feeling bad…5 years worth of pain & illness isn’t going away in a few days. I’ll just share a story from a member on here I read before my surgery- he had his op with the same surgeon I was thinking of seeing, & posted a few days after surgery that he felt awful, way worse than before and that he really regretted having it sone. It completely put me off having it done myself, but a while later I messaged him to see how he was doing as he hadn’t been on the site, & he said he was feeling great and was very happy with the results! But he hadn’t come back on to let anyone know…so that encouraged me & I’m so glad I had my surgery done. Just give healing a chance, you don’t have to make any decisions yet about having the other side done, so just focus on taking care of yourself, and cling on to any little positives that you can find, like that you don’t have pain from the surgery, hopefully more improvements will follow. God bless
